Jeffrey Aimee, Andracchio Lauren, Dvorak Meg, Lomas Paula, Smith Beth, Borowitz Drucy
Cystic Fibrosis Foundation, Bethesda, MD, USA.
Adult Cystic Fibrosis Program, Stanford Healthcare, Stanford, CA, USA.
J Patient Exp. 2020 Dec;7(6):1748-1754. doi: 10.1177/2374373520974322. Epub 2021 Jan 3.
We sought to evaluate the feasibility, acceptability, and benefits of a virtual one-to-one peer support program for people with cystic fibrosis and their family members through a retrospective program evaluation. This peer support program was developed in collaboration with patients, health care providers, and CF Foundation program staff. Mentees were paired with a trained peer mentor for 3-month mentoring via video, phone, email, or text. We found that the peer support program was feasible and acceptable. Success factors include a range of positive benefits including practical support as well as social and emotional support. Two-thirds of mentees reported at least 4 different benefits. Mentors reported multiple benefits after providing support through mentoring. Our program evaluation demonstrates that virtual peer support based on informal sharing of life experiences is an achievable way to provide social support and enhance health and well-being in chronic disease management.
我们试图通过一项回顾性项目评估，来评估一项针对囊性纤维化患者及其家庭成员的虚拟一对一同伴支持项目的可行性、可接受性和益处。该同伴支持项目是与患者、医疗服务提供者以及囊性纤维化基金会项目工作人员合作开发的。学员们与一名经过培训的同伴导师配对，通过视频、电话、电子邮件或短信进行为期3个月的指导。我们发现同伴支持项目是可行且可接受的。成功因素包括一系列积极的益处，包括实际支持以及社交和情感支持。三分之二的学员报告至少有4种不同的益处。导师们在通过指导提供支持后也报告了多种益处。我们的项目评估表明，基于生活经验的非正式分享的虚拟同伴支持是在慢性病管理中提供社会支持并增进健康和福祉的一种可行方式。
