Ghahramani Nasrollah, Chinchilli Vernon M, Kraschnewski Jennifer L, Lengerich Eugene J, Sciamanna Christopher N
Pennsylvania State University, College of Medicine.
J Patient Exp. 2022 Jan 27;9:23743735221076314. doi: 10.1177/23743735221076314. eCollection 2022.
Chronic kidney disease (CKD) is associated with substantial morbidity, mortality, cost, and increased caregiver burden. Peer mentoring (PM) improves multiple outcomes in various chronic diseases. The effect of PM on caregiver burden among caregivers of patients with CKD has not been studied. We conducted a randomized clinical trial to test the effectiveness of a structured PM program on burden of care among caregivers of patients with CKD. We randomized 86 caregivers to receive 6 months of intervention in 1 of 3 groups: (1) face-to-face PM ( = 29); (2) online PM ( = 29); and (3) usual care: textbook-only ( = 28). Peer mentors were caregivers of patients with CKD, who received 16 h of instruction. All participants received a copy of a textbook, which contains detailed information about kidney disease. Participants in the PM groups received FTF or online PM for 6 months. The outcome was time-related change in the Zarit Burden Interview (ZBI) score. There was a statistically significant decrease in the ZBI score (SE: -3.44; CI: -6.31, -0.57 [ = 0.002]) compared with baseline, among the online PM group. Online PM led to decreased caregiver burden among caregivers of patients with CKD. The study was limited to English-speaking subjects with computer literacy.
慢性肾脏病(CKD)与较高的发病率、死亡率、成本以及护理人员负担增加相关。同伴指导(PM)可改善多种慢性疾病的多项预后。PM对CKD患者护理人员的护理负担的影响尚未得到研究。我们进行了一项随机临床试验,以测试结构化PM计划对CKD患者护理人员护理负担的有效性。我们将86名护理人员随机分为3组中的1组,接受为期6个月的干预:(1)面对面PM(n = 29);(2)在线PM(n = 29);(3)常规护理:仅使用教科书(n = 28)。同伴指导者为CKD患者的护理人员,他们接受了16小时的指导。所有参与者都收到了一本教科书,其中包含有关肾脏疾病的详细信息。PM组的参与者接受了6个月的面对面或在线PM。结局指标是Zarit护理负担访谈(ZBI)评分随时间的变化。与基线相比,在线PM组的ZBI评分有统计学意义的下降(标准误:-3.44;置信区间:-6.31,-0.57 [P = 0.002])。在线PM减轻了CKD患者护理人员的护理负担。该研究仅限于有计算机操作能力的英语使用者。