利用 Twitter 了解痴呆症患者的 COVID-19 体验：信息流行病学研究。
Using Twitter to Understand the COVID-19 Experiences of People With Dementia: Infodemiology Study.
机构信息
Department of Psychology, University of Saskatchewan, Saskatoon, SK, Canada.
College of Pharmacy and Nutrition, University of Saskatchewan, Saskatoon, SK, Canada.
出版信息
J Med Internet Res. 2021 Feb 3;23(2):e26254. doi: 10.2196/26254.
BACKGROUND
The COVID-19 pandemic is affecting people with dementia in numerous ways. Nevertheless, there is a paucity of research on the COVID-19 impact on people with dementia and their care partners.
OBJECTIVE
Using Twitter, the purpose of this study is to understand the experiences of COVID-19 for people with dementia and their care partners.
METHODS
We collected tweets on COVID-19 and dementia using the GetOldTweets application in Python from February 15 to September 7, 2020. Thematic analysis was used to analyze the tweets.
RESULTS
From the 5063 tweets analyzed with line-by-line coding, we identified 4 main themes including (1) separation and loss; (2) COVID-19 confusion, despair, and abandonment; (3) stress and exhaustion exacerbation; and (4) unpaid sacrifices by formal care providers.
CONCLUSIONS
There is an imminent need for governments to rethink using a one-size-fits-all response to COVID-19 policy and use a collaborative approach to support people with dementia. Collaboration and more evidence-informed research are essential to reducing COVID-19 mortality and improving the quality of life for people with dementia and their care partners.
背景
COVID-19 大流行正在以多种方式影响痴呆症患者。然而，关于 COVID-19 对痴呆症患者及其护理人员的影响的研究甚少。
目的
本研究旨在通过 Twitter 了解 COVID-19 对痴呆症患者及其护理人员的影响。
方法
我们使用 Python 中的 GetOldTweets 应用程序于 2020 年 2 月 15 日至 9 月 7 日期间收集有关 COVID-19 和痴呆症的推文。采用主题分析法对推文进行分析。
结果
通过逐行编码对 5063 条推文进行分析，我们确定了 4 个主要主题，包括（1）分离和丧失；（2）COVID-19 引起的困惑、绝望和被抛弃感；（3）压力和疲惫感加剧；以及（4）正式护理人员的无偿牺牲。
结论
政府迫切需要重新考虑使用一刀切的方式来应对 COVID-19 政策，并采取协作方式来支持痴呆症患者。合作和更多基于证据的研究对于降低 COVID-19 死亡率以及改善痴呆症患者及其护理人员的生活质量至关重要。
Zotero 插件