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德国大学医院环境下皮肤癌住院患者的经历:一项横断面调查。

Experiences of In-Patients with Skin Cancer in a German University Hospital Setting: A Cross-Sectional Survey.

作者信息

Steeb Theresa, Wessely Anja, Merkl Heike, Voskens Caroline, Erdmann Michael, Heinzerling Lucie, Berking Carola, Heppt Markus V

机构信息

Department of Dermatology, University Hospital Erlangen, Friedrich-Alexander-University (FAU) Erlangen-Nuremberg, Erlangen 91054, Germany.

Comprehensive Cancer Center Erlangen, European Metropolitan Region of Nuremberg, Erlangen, Germany.

出版信息

Patient Prefer Adherence. 2021 Jan 12;15:41-48. doi: 10.2147/PPA.S276417. eCollection 2021.

DOI:10.2147/PPA.S276417
PMID:33469273
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7811463/
Abstract

PURPOSE

An important measure of hospital quality is the satisfaction of the patients receiving in-patient care. This cross-sectional study aimed to assess skin cancer patients' experiences in a university hospital setting as a measure of quality of cancer care.

PATIENTS AND METHODS

Questionnaires were mailed to patients with skin cancer after receiving in-patient overnight treatment in the dermatological unit of the university hospital Erlangen (Germany) from 1 September to 30 November 2017. Patients were asked to evaluate their overall experience of this episode of care and to complete the Picker Inpatient Survey questionnaire on specific aspects of their care, such as patient satisfaction regarding contact with staff, need for information, recommendation of the hospital as well as tumor-specific questions. The results were re-coded as problems and reported as frequencies and their percentage.

RESULTS

A total of 103 of 159 questionnaires were returned (64.8%). All patients rated the treatment and care they had received to be good or very good. Additionally, all patients would recommend our in-patient clinic to their families or friends. The patients most commonly criticized inconsistency of care delivered by the same physician (29.7%, 30/101) and feeling of insufficient involvement in the decision-making processes (21.1%, 20/95). Besides this, 19.0% (11/58) and 34.6% (18/52) of patients were not satisfied with physicians and nurses, respectively, appropriately addressing their fears or anxieties. In the cancer-specific questionnaire, the majority of patients were dissatisfied with further support regarding professional and social rehabilitation possibilities (85.7%, 30/35) and psycho-oncology (56.3%, 18/32).

CONCLUSION

Overall, the majority of patients were satisfied with the in-patient skin cancer treatment. However, physicians and nurses can enhance patient satisfaction by addressing patients' fears and anxieties regarding their disease and treatment. Besides, our results highlight the importance of psycho-oncological support.

摘要

目的

医院质量的一项重要衡量指标是接受住院治疗的患者的满意度。这项横断面研究旨在评估皮肤癌患者在大学医院环境中的就医体验,以此作为癌症护理质量的一项衡量标准。

患者与方法

对2017年9月1日至11月30日在德国埃尔朗根大学医院皮肤科接受过夜住院治疗后的皮肤癌患者邮寄问卷调查。要求患者评估此次护理的总体体验,并完成关于护理特定方面的皮克住院患者调查问卷,如患者对与医护人员接触的满意度、信息需求、对医院的推荐以及肿瘤相关问题。结果重新编码为问题,并以频率及其百分比形式报告。

结果

159份问卷共返回103份(64.8%)。所有患者对所接受的治疗和护理评价为良好或非常好。此外,所有患者都会向家人或朋友推荐我们的住院诊所。患者最常批评的是同一位医生提供的护理不一致(29.7%,30/101)以及在决策过程中参与感不足(21.1%,20/95)。除此之外,分别有19.0%(11/58)和34.6%(18/52)的患者对医生和护士未适当处理他们的恐惧或焦虑不满意。在癌症特定问卷中,大多数患者对专业和社会康复可能性的进一步支持(85.7%,30/35)以及心理肿瘤学(56.3%,18/32)不满意。

结论

总体而言,大多数患者对皮肤癌住院治疗感到满意。然而,医生和护士可以通过处理患者对疾病和治疗的恐惧与焦虑来提高患者满意度。此外,我们的结果凸显了心理肿瘤学支持的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf3d/7811463/a66dc3459382/PPA-15-41-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf3d/7811463/c6c14e06ebc2/PPA-15-41-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf3d/7811463/a66dc3459382/PPA-15-41-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf3d/7811463/c6c14e06ebc2/PPA-15-41-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bf3d/7811463/a66dc3459382/PPA-15-41-g0002.jpg

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Sources of information and support for melanoma patients: differences between patients' and clinicians' preferences.黑色素瘤患者的信息来源与支持:患者与临床医生偏好的差异
J Dtsch Dermatol Ges. 2019 Jun;17(6):652-654. doi: 10.1111/ddg.13831. Epub 2019 Apr 1.
3
[Psycho-oncology in dermatological practice : Evaluation of need and care structures].
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Exploring the Most Visible German Websites on Melanoma Immunotherapy: A Web-Based Analysis.探索德国关于黑色素瘤免疫疗法的最热门网站:一项基于网络的分析。
JMIR Cancer. 2018 Dec 13;4(2):e10676. doi: 10.2196/10676.
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Information-seeking and use of information resources among melanoma patients of German skin cancer centers.德国皮肤癌中心黑素瘤患者的信息检索和信息资源利用。
J Dtsch Dermatol Ges. 2018 Sep;16(9):1093-1101. doi: 10.1111/ddg.13630. Epub 2018 Aug 9.
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