Boman Åse, Dahlborg Elisabeth, Eriksson Henrik, Tengelin Ellinor
Department of Health Sciences, University West, Trollhattan, Sweden.
Department of Health Sciences, The Swedish Red Cross University College, Stockholm, Sweden.
Nurs Inq. 2021 Jul;28(3):e12401. doi: 10.1111/nin.12401. Epub 2021 Jan 21.
The aim of this study was to analyse how the patient is constructed and socially positioned in Swedish patient information. Corpus-assisted critical discourse analysis methodology was utilised on a sample of 56 online patient information texts about cancer containing a total of 126,711 words. The findings show an overarching discourse of informed consent guided by specific features to produce a patient norm that we name "the reasonable patient", who is receptive to arguments, emotionally restrained and makes decisions based on information. Through the discourse of informed consent, the norm of the reasonable patient emerges, apparently to even out the imbalance of power between patient and professional, but in reality, more likely to construct a patient who is easily controlled and managed. When the self-responsibility towards health is incorporated into the everyday domestic spaces via digital health technologies, the ideas and concepts of the patient role need to be reconsidered based on these new conditions. We conclude that it is important for nursing researchers to broaden the research on patients to include the relationship of power created through language. This study demonstrates both methodological and empirical possibilities to do so.
本研究的目的是分析瑞典患者信息中患者是如何被构建以及在社会中的定位。运用语料库辅助批评话语分析方法，对56篇关于癌症的在线患者信息文本样本进行分析，这些文本共计126,711个单词。研究结果显示，在特定特征的引导下，存在一种总体的知情同意话语，以产生一种患者规范，我们将其命名为“理性患者”，即接受观点、情绪克制并基于信息做出决策的患者。通过知情同意话语，理性患者的规范得以出现，表面上是为了平衡患者与专业人员之间的权力失衡，但实际上更有可能构建出一个易于控制和管理的患者。当通过数字健康技术将对健康的自我责任融入日常家庭空间时，需要基于这些新情况重新审视患者角色的观念和概念。我们得出结论，护理研究人员拓宽对患者的研究，将通过语言产生的权力关系纳入其中非常重要。本研究展示了这样做在方法和实证方面的可能性。
