Daly Gina, Jackson Jeanne, Lynch Helen
Department of Occupational Science and Occupational Therapy, University College Cork, Cork, Ireland.
Front Psychol. 2022 Oct 20;13:940478. doi: 10.3389/fpsyg.2022.940478. eCollection 2022.
Autistic children with sensory processing differences successfully navigate and engage in meaningful family daily occupations within home and community environments through the support of their family. To date however, much of the research on autistic children with sensory processing differences, has primarily been deficit focused, while much of the caregiver research has focused on issues of distress, burden, effort, and emotional trauma in coping with their child's diagnosis. This study aimed to conduct a qualitative evidence synthesis, using a meta-ethnographic approach to explore the gap identified in understanding successful occupational experiences of family participation and daily family routines when supporting an autistic child with sensory processing differences and to offer an alternative strengths-based perspective. Inclusion criteria were studies which were peer-reviewed qualitative design, published from 2000 to 2021, and that concerned parents/caregivers' perspectives of family occupations of children diagnosed with autism spectrum disorder. Studies were electronically searched in eight databases from October to December 2021 and 23 studies were identified which met the inclusion criteria. Noblit and Hare's seven step approach for conducting analysis in meta-ethnography was used, and three themes identified: (1) sensory processing differences in daily life, (2) what is hard about hard, and (3) orchestrating family life. Results identified the centrality of sensory experiences in understanding family life. Living with unpredictability while orchestrating certainty through routines was core to successful participation. This review provides insights into how parents negotiate the complexities of constructing family life when living with an autistic child. The results can inform the design of future interventions that specifically address the relationship between meaningful participation in family occupations and daily routines and sensory processing in autistic children.
https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42022298938, identifier: CRD42022298938.
有感觉统合差异的自闭症儿童在家庭的支持下，能够成功地在家庭和社区环境中参与并融入有意义的家庭日常活动。然而，迄今为止，关于有感觉统合差异的自闭症儿童的研究大多集中在缺陷方面，而护理者研究大多关注应对孩子诊断时的痛苦、负担、努力和情感创伤等问题。本研究旨在进行一项定性证据综合分析，采用元民族志方法，探索在理解支持有感觉统合差异的自闭症儿童时家庭参与的成功职业经历和日常家庭活动方面所发现的差距，并提供一种基于优势的替代视角。纳入标准为2000年至2021年发表的、经过同行评审的定性设计研究，且涉及父母/护理者对被诊断患有自闭症谱系障碍儿童的家庭活动的看法。2021年10月至12月在八个数据库中进行了电子检索，共识别出23项符合纳入标准的研究。采用了诺布利特和黑尔在元民族志中进行分析的七个步骤方法，确定了三个主题：（1）日常生活中的感觉统合差异，（2）困难之处的难点，（3）协调家庭生活。结果表明感觉体验在理解家庭生活中具有核心地位。在通过日常活动安排确定性的同时应对不可预测性是成功参与的关键。本综述深入探讨了父母在与自闭症儿童共同生活时如何应对构建家庭生活的复杂性。研究结果可为未来干预措施的设计提供参考，这些干预措施专门针对自闭症儿童有意义地参与家庭活动和日常活动与感觉统合之间的关系。
https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42022298938，标识符：CRD42022298938 。
