Fekonja Zvonka, Kmetec Sergej, Novak Barbara, McCormack Brendan, Mlinar Reljić Nataša
Faculty of Health Science, University of Maribor, Maribor, Slovenia.
General Hospital Celje, Celje, Slovenia.
J Nurs Manag. 2021 Jul;29(5):1284-1292. doi: 10.1111/jonm.13267. Epub 2021 Feb 7.
To investigate the family members' experiences with receiving help and support while their loved one develops dementia and their subsequent placement in nursing homes.
As the dementia disease progresses, some family members will struggle with the option of nursing home placement. This situation can precipitate feelings of anger, disappointment and guilt, all of which can be overwhelming.
A qualitative descriptive study with in-depth interviews (n = 19) was carried out in several nursing homes of Slovenia's North Eastern Region.
Inductive thematic analysis identified two main themes: (i) developing the diagnosis and (ii) accommodation process. Family members noticed the progressive behavioural changes in their loved ones. While they were searching for help at the primary health care level, they experienced a lack of help and support.
When family members detect behavioural changes in their loved ones, the primary health care team should establish an early diagnosis of dementia and provide adequate decision-making support.
The findings are useful to prepare guidance for a family member to inform them of the types of support available and from which associations and organisations. To achieve adequate management support, primary health care teams need to be aware of family member experiences.
调查家庭成员在其亲人患痴呆症期间接受帮助和支持的经历，以及亲人随后入住养老院的情况。
随着痴呆症病情的发展，一些家庭成员会在是否将亲人送入养老院的问题上纠结。这种情况可能引发愤怒、失望和内疚等情绪，所有这些情绪都可能难以承受。
在斯洛文尼亚东北部地区的几家养老院开展了一项定性描述性研究，进行了深度访谈（n = 19）。
归纳主题分析确定了两个主要主题：（i）确诊过程和（ii）入住过程。家庭成员注意到亲人行为逐渐发生变化。当他们在初级卫生保健层面寻求帮助时，却体验到缺乏帮助和支持。
当家庭成员察觉到亲人行为发生变化时，初级卫生保健团队应尽早诊断痴呆症并提供充分的决策支持。
研究结果有助于为家庭成员编写指导手册，告知他们可获得的支持类型以及来自哪些协会和组织。为了实现充分的管理支持，初级卫生保健团队需要了解家庭成员的经历。
