• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

自闭症谱系障碍的年轻人如何应对 COVID-19 大流行导致的隔离?一种从家庭角度出发的方法。

How have youth with Autism Spectrum Disorder managed quarantine derived from COVID-19 pandemic? An approach to families perspectives.

机构信息

Open University of Catalonia, Psychological and Educational Studies, Barcelona, Spain; Faculty of Psychology, Education and Sports Sciences Blanquerna, University Ramon Llull, Barcelona, Spain.

Open University of Catalonia, Psychological and Educational Studies, Barcelona, Spain; Centre ABAULA, Girona.

出版信息

Res Dev Disabil. 2021 Mar;110:103860. doi: 10.1016/j.ridd.2021.103860. Epub 2021 Jan 12.

DOI:10.1016/j.ridd.2021.103860
PMID:33486395
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9758011/
Abstract

Quarantine derived from COVID-19 pandemic has challenged children and adolescents with Autism Spectrum Disorder (ASD) and their families daily life and routines. Because of these children unique needs related to manage uncertainty and overcoming situations, an in-depth approach to how they navigated through quarantine urged to better comprehend their current support needs. Forty-seven families with a child with ASD ranging in age between 2 and 17 years old (M = 7.3, SD = 3.4) from the north of Spain responded to an online developed questionnaire on different aspects of their daily life management of quarantine. Most of the families stressed that their offspring better drove quarantine than expected. Some families reported that youth participated more often in families' routines and were more communicative with their parents. Families, beyond some difficulties aroused, had more time to qualitatively spend with their children to teach new skills as autonomy or house care related skills. Families also developed new strategies to manage quarantine, such as structuring their days, using visual supports or new technologies for learning or leisure, and found more useful in this effort their family cohesion, online contact with relatives, and having online psychological supports.

摘要

由于 COVID-19 大流行而实施的隔离措施,给患有自闭症谱系障碍(ASD)的儿童及其家庭的日常生活和日常作息带来了挑战。由于这些孩子在应对不确定性和克服困难方面存在特殊需求,因此需要深入了解他们在隔离期间的应对方式,以便更好地了解他们当前的支持需求。来自西班牙北部的 47 个 ASD 儿童家庭(年龄 2 至 17 岁,M = 7.3,SD = 3.4)对在线开发的有关隔离期间日常生活管理的不同方面的问卷做出了回应。大多数家庭强调,他们的孩子比预期更好地适应了隔离。一些家庭报告说,年轻人更经常参与家庭日常生活,与父母的沟通也更多。除了一些引起的困难之外,家庭有更多的时间与孩子进行高质量的相处,以教授新的技能,例如与自主或家务相关的技能。家庭还制定了新的隔离管理策略,例如安排日常生活、使用视觉支持或新技术进行学习或休闲,并发现家庭凝聚力、与亲戚的在线联系以及在线心理支持在这方面更加有用。

相似文献

1
How have youth with Autism Spectrum Disorder managed quarantine derived from COVID-19 pandemic? An approach to families perspectives.自闭症谱系障碍的年轻人如何应对 COVID-19 大流行导致的隔离?一种从家庭角度出发的方法。
Res Dev Disabil. 2021 Mar;110:103860. doi: 10.1016/j.ridd.2021.103860. Epub 2021 Jan 12.
2
The impact of COVID-19 on children with autism spectrum disorder.新冠病毒病对自闭症谱系障碍儿童的影响。
Rev Neurol. 2020 Oct 16;71(8):285-291. doi: 10.33588/rn.7108.2020381.
3
Attitude, anxiety and perceived mental health care needs among parents of children with Autism Spectrum Disorder (ASD) in Saudi Arabia during COVID-19 pandemic.在 COVID-19 大流行期间,沙特阿拉伯自闭症谱系障碍 (ASD) 儿童父母的态度、焦虑和感知心理健康护理需求。
Res Dev Disabil. 2021 Apr;111:103873. doi: 10.1016/j.ridd.2021.103873. Epub 2021 Feb 2.
4
Autism spectrum: parents' perspectives reflecting the different needs of different families.自闭症谱系:反映不同家庭不同需求的家长观点。
BMC Pediatr. 2024 Jul 9;24(1):439. doi: 10.1186/s12887-024-04912-x.
5
Impact of the COVID-19 pandemic on children and adolescents with autism spectrum disorder and their families: a mixed-methods study protocol.2019年冠状病毒病疫情对自闭症谱系障碍儿童及青少年及其家庭的影响:一项混合方法研究方案
BMJ Open. 2022 Jan 25;12(1):e049336. doi: 10.1136/bmjopen-2021-049336.
6
Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia.在 COVID-19 大流行期间,沙特阿拉伯的自闭症谱系障碍(ASD)儿童在家中日常作息改变,导致父母的压力和情绪健康受到影响。
Res Dev Disabil. 2021 Jan;108:103822. doi: 10.1016/j.ridd.2020.103822. Epub 2020 Nov 30.
7
Psychological impact of the SARS-CoV-2 pandemic in children with neurodevelopmental disorders and their families: evaluation before and during covid-19 outbreak among an Italian sample.SARS-CoV-2 大流行对神经发育障碍儿童及其家庭的心理影响:在意大利样本中新冠疫情爆发前后的评估。
Riv Psichiatr. 2021 Jul-Aug;56(4):205-210. doi: 10.1708/3654.36348.
8
Analysis of the SPARK study COVID-19 parent survey: Early impact of the pandemic on access to services, child/parent mental health, and benefits of online services.SPARK研究中COVID-19家长调查问卷分析:疫情对服务获取、儿童/家长心理健康及在线服务益处的早期影响
Autism Res. 2021 Nov;14(11):2454-2470. doi: 10.1002/aur.2618. Epub 2021 Sep 30.
9
Parent perspectives on home participation of high-functioning children with autism spectrum disorder compared with a matched group of children without autism spectrum disorder.家长对高功能自闭症谱系障碍儿童与自闭症谱系障碍儿童相匹配的正常儿童的家庭参与的看法。
Autism. 2018 Jul;22(5):560-570. doi: 10.1177/1362361316685555. Epub 2017 Apr 21.
10
Psychological distress among caregivers raising a child with autism spectrum disorder during the COVID-19 pandemic.COVID-19 大流行期间养育自闭症谱系障碍儿童的照顾者的心理困扰。
Autism Res. 2021 Oct;14(10):2183-2188. doi: 10.1002/aur.2589. Epub 2021 Aug 7.

引用本文的文献

1
COVID-19 Pandemic Impacts on Behavioral and Emotional Health of Young Children With Autism.新冠疫情对自闭症幼儿行为和情绪健康的影响。
JAACAP Open. 2024 Apr 3;3(2):268-278. doi: 10.1016/j.jaacop.2024.02.006. eCollection 2025 Jun.
2
Disrupted functional connectome in a rodent model of autism during social isolation.社交隔离期间自闭症啮齿动物模型中功能连接组的破坏
Front Neural Circuits. 2025 May 14;19:1525130. doi: 10.3389/fncir.2025.1525130. eCollection 2025.
3
An online survey of perspectives towards the impact of the covid-19 pandemic amongst caregivers of adolescents with ASD.一项关于新冠疫情对自闭症谱系障碍青少年照料者影响的观点的在线调查。
BMC Nurs. 2024 Nov 14;23(1):830. doi: 10.1186/s12912-024-02492-w.
4
Experiences of caregivers of children with autism during the COVID-19 pandemic: A scoping review.自闭症儿童照顾者在 COVID-19 大流行期间的体验:范围综述。
S Afr J Commun Disord. 2024 Jul 18;71(1):e1-e12. doi: 10.4102/sajcd.v71i1.1017.
5
Living on with autism after a devastating earthquake: experiences of children and adolescents in Turkey.在一场毁灭性地震后带着自闭症继续生活:土耳其儿童和青少年的经历
Int J Dev Disabil. 2024 Feb 28;70(4):766-776. doi: 10.1080/20473869.2023.2301184. eCollection 2024.
6
Alignment of Canada's COVID-19 policy response with barriers and facilitators for coping reported by caregivers of youth with developmental delays, disorders, and disabilities.加拿大应对新冠疫情的政策与发育迟缓、疾病和残疾青年的照顾者报告的应对障碍及促进因素的一致性。
Front Rehabil Sci. 2024 Mar 25;5:1308062. doi: 10.3389/fresc.2024.1308062. eCollection 2024.
7
Psychological impact of the COVID-19 pandemic in children with autism spectrum disorder - a literature review.新冠疫情对自闭症谱系障碍儿童的心理影响——一项文献综述
Int J Dev Disabil. 2022 Apr 22;70(2):173-183. doi: 10.1080/20473869.2022.2066248. eCollection 2024.
8
From crisis to opportunity: integrating insights from COVID-19 into the autism research.从危机到机遇:将新冠疫情的见解融入自闭症研究
Front Psychiatry. 2024 Feb 9;15:1341737. doi: 10.3389/fpsyt.2024.1341737. eCollection 2024.
9
Remote vs. In-person Schooling during the COVID-19 Pandemic and Internalizing Symptoms among Children on the Autism Spectrum.新冠疫情期间远程学习与面授学习对比及自闭症谱系障碍儿童内化症状研究
Res Autism Spectr Disord. 2023 Nov;109. doi: 10.1016/j.rasd.2023.102284. Epub 2023 Nov 16.
10
Longitudinal Impact of the Pandemic on Social Disruption and Loneliness in Autistic and Non-Autistic Youth.疫情对自闭症和非自闭症青少年社会混乱及孤独感的纵向影响。
J Clin Child Adolesc Psychol. 2023 Nov 13:1-13. doi: 10.1080/15374416.2023.2272933.

本文引用的文献

1
Examining the impact of COVID-19 in ethnically diverse families with young children with intellectual and developmental disabilities.探讨 COVID-19 对有智力和发育障碍的年幼儿童的不同种族家庭的影响。
J Intellect Disabil Res. 2020 Oct;64(10):739-749. doi: 10.1111/jir.12769. Epub 2020 Aug 18.
2
COVID-19 and the Field of Intellectual and Developmental Disabilities: Where Have We Been? Where Are We? Where Do We Go?COVID-19 与智力和发育障碍领域:我们经历了什么?我们在哪里?我们要去哪里?
Intellect Dev Disabil. 2020 Aug 1;58(4):257-261. doi: 10.1352/1934-9556-58.4.257.
3
How is COVID-19 Affecting the Mental Health of Children with Special Educational Needs and Disabilities and Their Families?新冠疫情如何影响有特殊教育需求和残疾儿童及其家庭的心理健康?
J Autism Dev Disord. 2021 May;51(5):1772-1780. doi: 10.1007/s10803-020-04577-2.
4
Parents' Stress and Children's Psychological Problems in Families Facing the COVID-19 Outbreak in Italy.意大利家庭在面对新冠疫情爆发时父母的压力与孩子的心理问题
Front Psychol. 2020 Jul 3;11:1713. doi: 10.3389/fpsyg.2020.01713. eCollection 2020.
5
Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond.应对 COVID-19 大流行及之后的挑战,培养自闭症患者及其家庭的适应力和韧性,并推动关怀创新。
Mol Autism. 2020 Jul 22;11(1):61. doi: 10.1186/s13229-020-00365-y.
6
A balanced approach to decision-making in supporting people with IDD in extraordinarily challenging times.在极具挑战性的时期,为支持 IDD 患者做出决策时需采取平衡的方法。
Res Dev Disabil. 2020 Oct;105:103719. doi: 10.1016/j.ridd.2020.103719. Epub 2020 Jun 27.
7
The psychological impact of COVID-19 on the mental health in the general population.新冠病毒病对普通人群心理健康的心理影响。
QJM. 2020 Jun 22;113(8):531-7. doi: 10.1093/qjmed/hcaa201.
8
Phase 2 and Later of COVID-19 Lockdown: Is it Possible to Perform Remote Diagnosis and Intervention for Autism Spectrum Disorder? An Online-Mediated Approach.新冠疫情封锁的第二阶段及之后:是否有可能对自闭症谱系障碍进行远程诊断和干预?一种在线介导的方法。
J Clin Med. 2020 Jun 13;9(6):1850. doi: 10.3390/jcm9061850.
9
Psychosocial and Behavioral Impact of COVID-19 in Autism Spectrum Disorder: An Online Parent Survey.新冠疫情对自闭症谱系障碍患者的心理社会及行为影响:一项在线家长调查
Brain Sci. 2020 Jun 3;10(6):341. doi: 10.3390/brainsci10060341.
10
COVID-19: overcoming the challenges faced by individuals with autism and their families.新冠疫情:克服自闭症患者及其家庭面临的挑战
Lancet Psychiatry. 2020 Jun;7(6):481-483. doi: 10.1016/S2215-0366(20)30197-8. Epub 2020 May 20.