University of New Mexico, Albuquerque, NM, USA.
Hastings College, Hastings, NE, USA.
Res Dev Disabil. 2020 Oct;105:103719. doi: 10.1016/j.ridd.2020.103719. Epub 2020 Jun 27.
A balanced approach to decision-making during challenging times is necessary in order to avoid risks that jeopardize the lives and wellbeing of people with intellectual and developmental disabilities (IDD). The COVID-19 pandemic is the recent example of a crisis that places people with IDD at risk for lopsided societal reactions and threats to them or their wellbeing. Attention to decision-making is required to safeguard hard-earned achievements, including public policies and organization practices that emphasize human and legal rights, self-advocacy, individualized supports, inclusive environments, choices, and community inclusion. We suggest maintaining a holistic approach to understanding the lives and human functioning of people with IDD, a balanced approach to accountability and performance management, an understanding of the multidimensional properties of context, and a heightened vigilance in professional responsibility. A balanced approach will strengthen the likelihood of a return to high quality services and supports to people after the crisis, reduce loss of critical progress, and enhance stability across future social, political, and financial changes and challenges.
在充满挑战的时期,需要采取平衡的决策方法,以避免危及智障和发育障碍人士(IDD)的生命和福祉的风险。COVID-19 大流行是最近的一个例子,表明危机使智障人士面临社会反应失衡和对他们或其福祉的威胁。需要注意决策,以维护来之不易的成就,包括强调人权和法律权利、自我倡导、个性化支持、包容环境、选择和社区融入的公共政策和组织实践。我们建议保持全面的方法来理解智障人士的生活和人类功能,平衡问责制和绩效管理,理解背景的多维性质,以及提高专业责任的警惕性。平衡的方法将增加危机后为人们提供高质量服务和支持的可能性,减少关键进展的损失,并增强未来社会、政治和财务变化和挑战的稳定性。