Res Gerontol Nurs. 2021 Mar-Apr;14(2):69-78. doi: 10.3928/19404921-20210115-01. Epub 2021 Jan 25.
The Integrated Memory Care Clinic is a patient-centered medical home led by advanced practice RNs (APRNs) who provide dementia care and primary care simultaneously and continuously. We explored the experiences of 12 informal caregivers of persons living with dementia during their first year at the Clinic. Data were analyzed via directed content analysis. Caregivers described the Clinic as "the only place you should go to for dementia [care]." Caregivers felt a sense of belonging to the Clinic, valued APRNs' competence and staff's dedication, and round-the-clock telephone access to APRNs. Caregivers also acknowledged that "we're all out here swimming on our own." They expressed their sense of being overwhelmed and needing more services and medical and non-medical resources, and more prognostic information on dementia. Although the Clinic is beneficial for caregivers, caregiving demands exceed the supply of services and resources at the Clinic. [(2), 69-78.].
一体化记忆护理诊所是一个以患者为中心的医疗之家,由高级执业护师(APRNs)领导,他们同时并持续提供痴呆护理和初级保健。我们探讨了 12 名痴呆患者的非正式照护者在诊所的第一年的经历。通过定向内容分析对数据进行了分析。照护者将诊所描述为“治疗痴呆症[护理]的唯一去处”。照护者对诊所有一种归属感,重视 APRNs 的能力和工作人员的奉献精神,以及 24 小时随时可致电 APRNs。照护者也承认“我们都在独自努力”。他们表示自己感到不知所措,需要更多的服务以及医疗和非医疗资源,还有更多关于痴呆症的预后信息。尽管诊所对照护者有益,但照护需求超过了诊所的服务和资源供应。[(2),69-78.]。