Beattie Asha, Montgomery Amy, Halcomb Elizabeth
School of Nursing, Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Dementia (London). 2025 Oct;24(7):1258-1269. doi: 10.1177/14713012251361191. Epub 2025 Jul 14.
Memory clinics provide ongoing, community-based care for people living with dementia as well as supporting their carers. Much of the research to date has measured quantitative carer outcomes, which may fail to demonstrate the true value of the clinics to carer well-being. Therefore, this paper seeks to understand the carer's role and explore the impacts of a memory clinic on the carers of people living with dementia. A qualitative descriptive approach was used to inform semi-structured interviews with six carers and five clinic staff with direct carer contact. Interviews were audio-recorded and analysed using thematic analysis. Three themes were identified: perceptions of the carer role, psychological well-being and experience of the clinic. Carers experienced the hard work of their caring role and struggled with losing their sense of self and their social networks. The psychological well-being of carers was impacted by feelings of frustration, fatigue, depression and grief. Carers' experiences of the clinic focused on the positive impact resulting from individualised education, respite in a safe space and networking resulting from the memory clinic. The memory clinic was perceived as a valuable support for carers, with individualised support, respite and networking highly regarded. The primary limitations were the challenge of clinic access and the availability of additional clinic days.
记忆诊所为痴呆症患者提供持续的、基于社区的护理,并为他们的护理人员提供支持。迄今为止,许多研究都衡量了护理人员的量化结果,这可能无法证明诊所对护理人员幸福感的真正价值。因此,本文旨在了解护理人员的角色,并探讨记忆诊所对痴呆症患者护理人员的影响。采用定性描述方法对六名护理人员和五名与护理人员有直接接触的诊所工作人员进行半结构化访谈。访谈进行了录音,并采用主题分析法进行分析。确定了三个主题:对护理人员角色的认知、心理健康和对诊所的体验。护理人员体会到了护理工作的艰辛,在失去自我意识和社交网络方面挣扎。护理人员的心理健康受到挫折感、疲劳、抑郁和悲伤情绪的影响。护理人员对诊所的体验集中在个性化教育、在安全空间中得到喘息以及记忆诊所带来的社交所产生的积极影响上。记忆诊所被视为对护理人员的宝贵支持,个性化支持、喘息机会和社交受到高度重视。主要限制是诊所就诊的挑战以及额外诊日的可用性。