Department of Neurosurgery, University Medical Center, Johannes-Gutenberg-University Mainz, Mainz, Germany.
Division of Epidemiology and Health Services Research, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center, Johannes-Gutenberg-University Mainz, Mainz, Germany.
Qual Life Res. 2021 May;30(5):1513-1522. doi: 10.1007/s11136-021-02756-x. Epub 2021 Jan 31.
Psychosocial screening for glioma patients is challenging because many patients suffer from neurocognitive deficits, which may impair assessment. This study's aim was to exploratively develop three screening questions for unmet needs to prospectively be applicable in patient-doctor consultation.
Patient interviews, a survey for health-care professionals and a weighted scoring procedure were developed for this study. Six main areas were defined according to main areas of validated questionnaires (psyche, cognition, body, role functioning, social support, unmet needs). Patients and health-care professionals rated the importance of these areas and corresponding items, patients additionally stated whether the issues addressed affected them.
A total of 50 patients were included, and 36 health-care professionals participated in the online survey. The three areas (psyche, body and cognition) considered to be most relevant by both, health-care professionals and patients, generated three screening questions. If the patient was affected by the issue addressed with a screening question, a subordinate question from that area that our patient sample considered most important could additionally be asked. The elaborated screening questions are the following: (1) main area psyche: "Has your mood worsened?", (2) main area body: "Do physical changes put a strain on you?", and (3) main area cognition: "Has your memory capacity worsened?"
These questions represent a basis for further research regarding their application in neuro-oncological clinical routine.
对脑胶质瘤患者进行心理社会筛查具有挑战性，因为许多患者存在神经认知缺陷，这可能会影响评估。本研究的目的是探索性地开发三个用于未满足需求的筛查问题，以便前瞻性地适用于医患咨询。
为此研究制定了患者访谈、卫生保健专业人员调查和加权评分程序。根据验证问卷的主要领域（心理、认知、身体、角色功能、社会支持、未满足的需求）确定了六个主要领域。患者和卫生保健专业人员对这些领域和相应项目的重要性进行了评分，患者还说明了所涉及的问题是否对他们有影响。
共有 50 名患者纳入研究，36 名卫生保健专业人员参与了在线调查。两个群体（卫生保健专业人员和患者）都认为最重要的三个领域（心理、身体和认知）生成了三个筛查问题。如果患者受到与筛查问题相关的问题的影响，则可以进一步询问该领域中患者样本认为最重要的下属问题。详细的筛查问题如下：（1）主要心理领域：“你的情绪恶化了吗？”；（2）主要身体领域：“身体变化是否给你带来压力？”；（3）主要认知领域：“你的记忆力下降了吗？”
这些问题为进一步研究它们在神经肿瘤学临床常规中的应用提供了基础。
