Sophie Davis Biomedical Education Program at the CUNY School of Medicine, New York, NY.
Division of General Internal Medicine, Department of Medicine, Weill Cornell Medicine, New York, NY.
Ethn Dis. 2021 Jan 21;31(1):23-30. doi: 10.18865/ed.31.1.23. eCollection 2021 Winter.
The objectives of this study were two-fold: 1) to engage community stakeholders in identifying the top three social determinant of health (SDOH) barriers to the early detection and treatment of cancer in their respective communities; and 2) to develop a tailored plan responsive to the potential social risks identified within the catchment of an urban academic cancer center.
Stakeholders from four neighborhoods in Brooklyn, New York with disproportionate cancer burden were recruited; the nominal group technique, a semi-quantitative research method, was used to elicit the SDOH barriers. Responses were consolidated into categories and ranked by points received.
112 stakeholders participated in four community-based meetings. The SDOH categories of economic stability, education, and community and social context were identified as the top barriers. The themes of lost wages/employment, competing priorities, and the inability to afford care embodied the responses about economic stability. The domain of education was best described by the themes of low health literacy, targeted health topics to fill gaps in knowledge, and recommendations on the best modalities for improving health knowledge. Lastly, within the category of community and social context, the themes of stigma, bias, and discrimination, eroding support systems, and cultural misconceptions were described.
The implications of our study are three-fold. First, they highlight the strengths of the nominal group technique as a methodology for engaging community stakeholders. Second, our analysis led to identifying a smaller set of social priorities for which tailored screening and practical solutions could be implemented within our health care system. Third, the results provide insight into the actual types of interventions and resources that communities expect from the health care sector.
本研究的目的有两个:1)让社区利益相关者参与确定各自社区中癌症早期发现和治疗的三个主要社会决定因素(SDOH)障碍;2)制定针对城市学术癌症中心服务范围内潜在社会风险的定制计划。
从纽约布鲁克林四个癌症负担不成比例的社区招募了利益相关者;使用名义群体技术(一种半定量研究方法)来引出 SDOH 障碍。将回应合并为类别,并按得分进行排名。
112 名利益相关者参加了四次基于社区的会议。经济稳定、教育和社区及社会背景这三个社会决定因素类别被确定为主要障碍。经济稳定主题体现了失去工资/就业、竞争优先事项以及无力负担护理的回应;教育领域最好用健康素养低、针对知识空白的目标健康主题以及改善健康知识的最佳模式建议来描述;最后,在社区和社会背景类别中,描述了耻辱、偏见和歧视、支持系统瓦解以及文化误解等主题。
我们的研究有三个含义。首先,它们突出了名义群体技术作为一种让社区利益相关者参与的方法的优势。其次,我们的分析确定了一组较小的社会优先事项,可为我们的医疗保健系统实施定制筛查和实际解决方案。第三,结果提供了对社区从医疗保健部门期望的实际干预措施和资源类型的洞察。