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“我本有很多计划”:与晚期癌症成人进行预后沟通的存在主义维度。

"I Had a Lot More Planned": The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer.

机构信息

Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.

Department of Biobehavioral Health Sciences, NewCourtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.

出版信息

J Palliat Med. 2021 Sep;24(10):1443-1454. doi: 10.1089/jpm.2020.0696. Epub 2021 Feb 2.

Abstract

Communication about prognosis is a key ingredient of effective palliative care. When patients with advanced cancer develop increased prognostic understanding, there is potential for existential distress to occur. However, the existential dimensions of prognosis communication are underexplored. To describe the existential dimensions of prognosis communication in naturally-occurring palliative care conversations. This study was an explanatory sequential mixed methods design. We analyzed a random subset of patients from the Palliative Care Communication Research Initiative (PCCRI) parent study ( = 34, contributing to 45 palliative care conversations). Data were based on audio-recorded and transcribed inpatient palliative care conversations between adults with advanced cancer, their families, and palliative care clinicians. We stratified the study sample by levels of prognosis communication, and qualitatively examined patterns of existential communication, comparing the intensity, frequency, and content, within and across levels. Existential communication was more common, and of stronger intensity, within conversations with higher levels of prognosis communication. Conversations with more prognosis communication appeared to exhibit a shift toward the existential and away from the more physical nature of the serious illness experience. Existential and prognosis communication are intimately linked within palliative care conversations. Results highlight the multiplicity and mutuality of concerns that arise when contemplating mortality, drawing attention to areas of palliative care communication that warrant future research.

摘要

预后沟通是有效姑息治疗的关键组成部分。当晚期癌症患者对预后的理解增加时,可能会出现存在性困扰。然而,预后沟通的存在维度尚未得到充分探索。本研究旨在描述自然发生的姑息治疗对话中预后沟通的存在维度。这是一个解释性的顺序混合方法设计。我们分析了姑息治疗沟通研究倡议(PCCRI)母研究中的一个随机亚组患者(n=34,参与了 45 次姑息治疗对话)。数据基于成年人与姑息治疗临床医生之间的音频记录和转录的姑息治疗住院患者对话。我们根据预后沟通水平对研究样本进行分层,并在水平内和水平间定性地检查存在性沟通的模式,比较强度、频率和内容。在预后沟通水平较高的对话中,存在性沟通更为常见,且强度更大。具有更高预后沟通的对话似乎更倾向于存在性,而不是严重疾病体验的更身体性。在姑息治疗对话中,存在性和预后沟通密切相关。研究结果强调了在思考死亡时出现的多重和相互关联的问题,引起了对姑息治疗沟通领域需要进一步研究的关注。

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