Institute of Social Medicine, Occupational Health and Public Health (ISAP) Medical Faculty, University of Leipzig, Philipp-Rosenthal-Str. 55, 04103, Leipzig, Germany.
Department of Health Economics and Health Services Research, University Medical Centre Hamburg-Eppendorf (UKE), Hamburg, Germany.
BMC Palliat Care. 2021 Feb 8;20(1):29. doi: 10.1186/s12904-021-00722-5.
The evaluation of care strategies at the end of life is particularly important due to the globally increasing proportion of very old people in need of care. The ICECAP-Supportive Care Measure is a self-complete questionnaire developed in the UK to evaluate palliative and supportive care by measuring patient's wellbeing in terms of 'capability'. It is a new measure with high potential for broad and international use. The aims of this study were the translation of the ICECAP-Supportive Care Measure from English into German and the content validation of this version.
A multi-step and team-based translation process based on the TRAPD model was performed. An expert survey was carried out to assess content validity. The expert panel (n = 20) consisted of four expert groups: representative seniors aged 65+, patients aged 65+ living in residential care, patients aged 65+ receiving end-of-life care, and professionals in end-of-life care.
The German version of the ICECAP-Supportive Care Measure showed an excellent content validity on both item- and scale-level. In addition, a high agreement regarding the length of the single items and the total length of the questionnaire as well as the number of answer categories was reached.
The German ICECAP-SCM is a valid tool to assess the quality of life at the end of life that is suitable for use in different settings. The questionnaire may be utilized in multinational clinical and economic evaluations of end-of-life care.
由于需要护理的非常老年人在全球的比例不断增加，因此评估生命末期的护理策略尤为重要。ICECAP-支持性护理量表是一种在英国开发的自我完成的问卷，用于通过衡量患者在“能力”方面的幸福感来评估姑息治疗和支持性护理。这是一种具有广泛国际应用潜力的新方法。本研究的目的是将 ICECAP-支持性护理量表从英文翻译成德文，并对该版本进行内容验证。
根据 TRAPD 模型进行了多步骤和团队合作的翻译过程。进行了专家调查以评估内容有效性。专家小组（n=20）由四个专家组组成：年龄在 65 岁以上的代表老年人、居住在养老院的 65 岁以上的患者、接受临终关怀的 65 岁以上的患者以及临终关怀专业人员。
ICECAP-支持性护理量表的德文版在项目和量表水平上均具有出色的内容有效性。此外，还就单个项目的长度和问卷的总长度以及答案类别数达成了高度一致。
德文版的 ICECAP-SCM 是一种适合在不同环境中使用的评估生命末期生活质量的有效工具。该问卷可用于生命末期护理的跨国临床和经济评估。
