Guart Jiddu A, Byers Victor V, Sasson Daniel C, Bassiri-Tehrani Brian, Ranzer Matthew, Purnell Chad
Plastic Surgery, University of Illinois at Chicago, Chicago, USA.
Plastic Surgery, Northwestern University Feinberg School of Medicine, Chicago, USA.
Cureus. 2021 Feb 6;13(2):e13172. doi: 10.7759/cureus.13172.
Background Hidradenitis suppurativa (HS) severely impacts patients' quality of life (QoL). Surgery has shown potential in improving a patient's QoL in severe disease. Previous studies have evaluated QoL after surgery, but lack a disease-specific questionnaire to better evaluate the unique burden of disease that patients with HS experience. Objective To measure postoperative QoL in patients with HS using a modified version of the disease-specific questionnaire, the Hidradenitis Suppurativa Burden of Disease (HSBOD) Tool. Methods A retrospective study was conducted using 19 patients who underwent surgery for HS. A demographic form and a 19-item disease-specific questionnaire were emailed to patients who consented to complete the survey. Patient-reported outcomes were recorded on a 0-100 scale (100 representing the highest burden of disease). Results Of the 24 patients that received the survey, 19 completed it in its entirety. The mean±SD Burden of Disease (BoD) score for each of the five domains assessed by the survey were: symptoms and feelings (62±27), daily activities (65±30), leisure (57±31), work and school (48±32), and personal relationships (56±27). Pearson's correlation between the number of surgeries each patient underwent and their reported BoD scores were not significant. BoD scores were significantly higher in the symptoms and feelings domain for complex closure compared to both secondary intention and split-thickness skin grafting (STSG). Conclusion Despite having surgery, patients with hidradenitis still report impaired QoL. Further study is ongoing to determine how these measures compare to baseline preoperative values. This instrument provides a valuable tool to determine QoL in patients with hidradenitis.
化脓性汗腺炎（HS）严重影响患者的生活质量（QoL）。手术已显示出在改善重症患者生活质量方面的潜力。以往研究评估了手术后的生活质量，但缺乏一种针对该疾病的问卷来更好地评估HS患者所经历的独特疾病负担。目的：使用改良版的针对该疾病的问卷——化脓性汗腺炎疾病负担（HSBOD）工具，来测量HS患者术后的生活质量。方法：对19例接受HS手术的患者进行回顾性研究。向同意完成调查的患者发送一份人口统计学表格和一份包含19个项目的针对该疾病的问卷。患者报告的结果以0至100分制记录（100分代表最高疾病负担）。结果：在接受调查的24例患者中，19例完整完成了调查。调查评估的五个领域中每个领域的疾病负担（BoD）平均±标准差得分分别为：症状与感受（62±27）、日常活动（65±30）、休闲（57±31）、工作与学习（48±32）以及人际关系（56±27）。每位患者接受手术的次数与其报告的BoD得分之间的Pearson相关性不显著。与二期愈合和中厚皮片移植（STSG）相比，复杂闭合在症状与感受领域的BoD得分显著更高。结论：尽管接受了手术，化脓性汗腺炎患者仍报告生活质量受损。正在进行进一步研究以确定这些测量值与术前基线值相比如何。该工具为确定化脓性汗腺炎患者的生活质量提供了一个有价值的工具。
