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器官移植中的交叉性别分析:女性捐肾者。

An intersectional gender analysis in kidney transplantation: women who donate a kidney.

机构信息

Department of Nephrology, Consorci Hospitalari de Vic, Vic, Catalunya, Spain.

Research group on Methodology, Methods, Models and Outcomes of Health and Social Sciences (M3O), Faculty of Health Science and Welfare, Centre for Health and Social Care Research (CESS), University of Vic-Central University of Catalonia (UVIC-UCC), Vic, Spain.

出版信息

BMC Nephrol. 2021 Feb 16;22(1):59. doi: 10.1186/s12882-021-02262-9.

DOI:10.1186/s12882-021-02262-9
PMID:33593306
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7885450/
Abstract

BACKGROUND

Living-donor transplantation is the best treatment option in patients with chronic kidney failure. Global data show that women are less likely to be kidney recipients than men but are more likely to become living kidney donors. We explored the experience of women who donate a kidney to relatives with biological and socio-cultural ties and to understand the similarities and differences in their experience.

METHODS

A qualitative hermeneutic phenomenological study with an intersectional analysis of gender. Ten women donors accepted in the transplant evaluation period participated, all of whom donated a kidney to a pre-dialysis relative. Two categories were included: women with biological kinship ties (mothers, sisters) and women who have a socio-cultural relationship (wives) with kidney recipient. The data were collected through semi-structured in-depth interviews and analysed using thematic analysis.

RESULTS

Women donate their kidneys in a convinced manner, without worrying about their health, with an optimistic and positive attitude, and without believing that they are acting heroically. Women with biological kinship ties see it as a 'naturalization thing'. In contrast, wives donate conditioned by gender roles, but also as a form of empowerment and as a personal benefit: they donate in order to avoid taking on carer role for their husband and as a way of protecting their children.

CONCLUSION

The study's findings expand the conception of kidney donation as solely altruistic and may help professionals to pay attention to the complexity and intersectionality of features present in women who are living kidney donors.

摘要

背景

在慢性肾衰竭患者中,活体供肾移植是最佳治疗选择。全球数据显示,女性成为肾移植受者的可能性低于男性,但成为活体肾供者的可能性高于男性。我们探讨了与亲属具有生物学和社会文化联系的女性捐赠者的经历,并了解她们经历的相似之处和不同之处。

方法

这是一项定性解释学现象学研究,对性别进行了交叉分析。共有 10 名在移植评估期内被接受的女性捐赠者参与了研究,她们都向接受透析前的亲属捐赠了一个肾脏。包括两个类别:与肾脏受者有生物学亲缘关系的女性(母亲、姐妹)和与肾脏受者有社会文化关系的女性(妻子)。通过半结构化深入访谈收集数据,并使用主题分析进行分析。

结果

女性以一种坚定的方式捐赠肾脏,不担心自己的健康,态度乐观积极,不认为自己是在英勇行为。具有生物学亲缘关系的女性将其视为“自然而然的事情”。相比之下,妻子的捐赠是有条件的,受到性别角色的影响,但也是一种赋权形式和个人利益:她们捐赠是为了避免承担照顾丈夫的角色,也是保护孩子的一种方式。

结论

该研究的结果扩展了对肾脏捐赠纯粹是利他主义的概念,并可能有助于专业人员关注活体肾供者女性的特征的复杂性和交叉性。

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An intersectional gender analysis in kidney transplantation: women who donate a kidney.器官移植中的交叉性别分析:女性捐肾者。
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'It seemed churlish not to': How living non-directed kidney donors construct their altruism.“不这么做似乎有些不近人情”:非指定活体肾捐赠者如何构建他们的利他行为。
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Better the donor you know? A qualitative study of renal patients' views on 'altruistic' live-donor kidney transplantation.了解捐赠者更好?一项关于肾病患者对“利他性”活体肾移植看法的定性研究。
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A multicenter cohort study of potential living kidney donors provides predictors of living kidney donation and non-donation.一项多中心队列研究潜在活体供肾者,提供了活体肾捐赠和不捐赠的预测因素。
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本文引用的文献

1
Global, regional, and national burden of chronic kidney disease, 1990-2017: a systematic analysis for the Global Burden of Disease Study 2017.全球、区域和国家慢性肾脏病负担,1990-2017 年:2017 年全球疾病负担研究的系统分析。
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Women donate, men receive: gender disparity among renal donors.女性捐献,男性接受:肾捐献者中的性别差异。
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The experience of donating and receiving a kidney: A systematic review of qualitative studies.捐献和接受肾脏的体验:定性研究的系统评价。
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Risks of Living Kidney Donation: Current State of Knowledge on Outcomes Important to Donors.活体肾脏捐献的风险:对供者重要结局的现有知识状况。
Clin J Am Soc Nephrol. 2019 Apr 5;14(4):597-608. doi: 10.2215/CJN.11220918. Epub 2019 Mar 11.
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Impact of gender and gender disparities in patients with kidney disease.肾脏疾病患者中的性别和性别差异的影响。
Curr Opin Nephrol Hypertens. 2019 Mar;28(2):178-182. doi: 10.1097/MNH.0000000000000482.
6
Parents' experiences of donation to their child before kidney transplantation: A qualitative study.父母在孩子肾移植前捐赠的体验:一项定性研究。
J Clin Nurs. 2019 May;28(9-10):1482-1490. doi: 10.1111/jocn.14734. Epub 2019 Jan 11.
7
Financial Costs Incurred by Living Kidney Donors: A Prospective Cohort Study.活体肾捐献者的经济成本:一项前瞻性队列研究。
J Am Soc Nephrol. 2018 Dec;29(12):2847-2857. doi: 10.1681/ASN.2018040398. Epub 2018 Nov 7.
8
Altruism, solidarity and affect in live kidney donation and breastmilk sharing.活体肾脏捐献和母乳分享中的利他主义、团结和情感。
Sociol Health Illn. 2019 Mar;41(3):553-566. doi: 10.1111/1467-9566.12805. Epub 2018 Aug 28.
9
Unspoken ambivalence in kinship obligation in living donation.活体捐赠中亲属关系义务里潜在的矛盾心理。
Prog Transplant. 2018 Sep;28(3):250-255. doi: 10.1177/1526924818781562. Epub 2018 Jun 12.
10
What we do and do not know about women and kidney diseases; questions unanswered and answers unquestioned: reflection on World Kidney Day and International Woman's Day.我们对女性与肾脏疾病了解及未知的情况;未解答的问题与未受质疑的答案:关于世界肾脏日和国际妇女节的思考
BMC Nephrol. 2018 Mar 15;19(1):66. doi: 10.1186/s12882-018-0864-y.