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仅通过电话进行 HIV 自我检测:利用智能手机应用程序进行 HIV 自我检测中社区、情感和代理能力的定性探索

'You're only there on the phone'? A qualitative exploration of community, affect and agential capacity in HIV self-testing using a smartphone app.

机构信息

Department of Health, Ethics and Society, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, The Netherlands.

Division of Clinical Epidemiology, Department of Medicine, McGill University and Research Institute of the McGill University Health Centre, Montréal, QC, Canada.

出版信息

Sociol Health Illn. 2021 Mar;43(3):591-606. doi: 10.1111/1467-9566.13242. Epub 2021 Feb 26.

Abstract

Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self-monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self-testing using a smartphone app strategy in Cape Town, South Africa and Montréal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app-based self-test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app-based self-testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care.

摘要

移动医疗(mHealth)技术旨在为艾滋病护理提供诊断支持、健康教育、风险评估和自我监测,旨在改善或取代部分治疗关系。治疗关系的一部分是情感的,伴随着情感的出现,然而,很少有关于移动医疗在艾滋病护理中的情感和艾滋病检测实践的研究。此外,大多数探索情感和关怀关系的文献,以及移动医疗的引入,都仅限于欧洲和澳大利亚的背景。本文探讨了南非开普敦和加拿大蒙特利尔使用智能手机应用策略进行艾滋病自我检测的情感维度。本研究基于对研究参与者和受过培训的艾滋病医疗服务提供者的观察记录、41 次访谈和 1 次焦点小组讨论,这些参与者和提供者来自两项评估基于应用程序的自我测试策略的定量研究。我们的论文揭示了在使用该应用程序进行测试以及之前的测试经历时,恐惧、冷漠、判断、沮丧和舒适是如何产生的,以及这与护理提供者和测试材料有何关系。关注基于应用程序的自我测试实践的情感方面,可以使治疗过程中应用程序的某些功能和局限性显而易见,并说明移动医疗如何有助于艾滋病护理。

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