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本文引用的文献

1
A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India.基于问卷的印度一项新兴人工耳蜗植入(CI)服务中家长对小儿人工耳蜗康复服务看法的分析:一项试点研究
Cochlear Implants Int. 2018 Nov;19(6):338-349. doi: 10.1080/14670100.2018.1489937. Epub 2018 Jun 29.
2
The analysis of reliability and validity of the IT-MAIS, MAIS and MUSS.IT-MAIS、MAIS和MUSS的信效度分析。
Int J Pediatr Otorhinolaryngol. 2017 May;96:106-110. doi: 10.1016/j.ijporl.2017.03.006. Epub 2017 Mar 6.
3
Language outcomes after cochlear implantation.人工耳蜗植入后的语言结果。
Otolaryngol Clin North Am. 2012 Feb;45(1):173-85. doi: 10.1016/j.otc.2011.08.024. Epub 2011 Oct 19.
4
A comparison of the anticipated benefits and received outcomes of pediatric cochlear implantation: parental perspectives.小儿人工耳蜗植入预期益处与实际效果的比较:家长观点
Am Ann Deaf. 2010 Summer;155(3):322-38. doi: 10.1353/aad.2010.0020.
5
Comparison between the IT-MAIS and MUSS questionnaires with video-recording for evaluation of children who may receive a cochlear implantation.用于评估可能接受人工耳蜗植入的儿童时,IT-MAIS问卷与MUSS问卷以及视频记录之间的比较。
Braz J Otorhinolaryngol. 2008 Jan-Feb;74(1):91-8. doi: 10.1016/s1808-8694(15)30757-6.
6
Long-term functional outcomes and academic-occupational status in implanted children after 10 to 14 years of cochlear implant use.人工耳蜗植入儿童使用10至14年后的长期功能结局及学业职业状况
Otol Neurotol. 2005 Nov;26(6):1152-60. doi: 10.1097/01.mao.0000180483.16619.8f.
7
Validation of three adaptations of the Meaningful Auditory Integration Scale (MAIS) to German, English and Polish.对《有意义听觉整合量表》(MAIS)的三个德语、英语和波兰语版本的验证。
Int J Audiol. 2004 Mar;43(3):156-61. doi: 10.1080/14992020400050021.
8
Children with cochlear implants: changing parent and deaf community perspectives.接受人工耳蜗植入的儿童:家长和聋人社区观念的转变
Arch Otolaryngol Head Neck Surg. 2004 May;130(5):673-7. doi: 10.1001/archotol.130.5.673.
9
Reliability of a rating scale for measuring speech intelligibility after pediatric cochlear implantation.一种用于测量小儿人工耳蜗植入术后言语清晰度的评定量表的可靠性。
Otol Neurotol. 2001 Sep;22(5):631-3. doi: 10.1097/00129492-200109000-00012.
10
Use of a parent-report scale to assess benefit in children given the Clarion cochlear implant.使用家长报告量表评估接受Clarion人工耳蜗植入的儿童的获益情况。
Am J Otol. 1997 Nov;18(6 Suppl):S79-80.

临床医生与家长对人工耳蜗植入者结局的观点比较:一项南印度的经验

Comparison of Clinician Versus Parental Perspectives of Outcomes in Cochlear Implantees: A South Indian Experience.

作者信息

Venkataramani Nithya, Anbuchezhian R, Maheswari S Sudha, Arumugam Senthil Vadivu, Raghu Nandhan S, Kameswaran Mohan

机构信息

Madras ENT Research Foundation (P) Ltd Chennai, Chennai, India.

出版信息

Indian J Otolaryngol Head Neck Surg. 2021 Mar;73(1):41-44. doi: 10.1007/s12070-020-01959-x. Epub 2020 Jul 13.

DOI:10.1007/s12070-020-01959-x
PMID:33643883
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7881990/
Abstract

Outcomes of cochlear implantation (CI) are generically assessed using standard validated measures like CAP, SIR, MAIS and MUSS scales. Although this reflects the improvement in auditory verbal skills among the implantees with habilitation over one year, the overall perception of their skill development may vary between the parents of these children and the clinicians who provide the habilitation. This study aimed to compare the CAP and SIR scores sequentially over habilitation and further analyzes the correlation between clinician assessment (with CAP/SIR scores) and parental perspective (with MAIS/MUSS scores), at the end of one year of habilitation. 388 children aged 1-6 years who underwent unilateral CI were included in the study. Their baseline CAP and SIR scores were recorded post implantation. All children received 1 year of intensive auditory verbal therapy and their 12 month CAP, SIR, MAIS and MUSS scores were then recorded. The baseline CAP/SIR scores were compared with 12 month CAP/SIR scores and then their 12 month CAP/SIR scores were correlated with 12 month MAIS/MUSS scores respectively. There was significant difference between baseline and the 12 month CAP/SIR scores ( < 0.001). There was strong positive correlation between CAP and SIR scores after 12 months of habilitation (r = 0.7), while there was moderate positive correlation between CAP and MAIS scores (r = 0.59) and between SIR and MUSS scores (r = 0.49) respectively. Though the parents note significant improvement in child's communication abilities, the parental perspective of final outcomes does not always match with the clinician's assessments at the end of habilitation, as highlighted by the moderate correlations. A more precise method of holistic assessment is lacking currently and stands warranted.

摘要

人工耳蜗植入(CI)的效果一般使用如CAP、SIR、MAIS和MUSS量表等标准的经过验证的测量方法进行评估。虽然这反映了接受康复训练一年以上的植入者在听觉语言技能方面的改善,但这些孩子的父母和提供康复训练的临床医生对其技能发展的总体认知可能存在差异。本研究旨在比较康复训练过程中CAP和SIR评分的变化,并在康复训练一年结束时进一步分析临床医生评估(通过CAP/SIR评分)与家长观点(通过MAIS/MUSS评分)之间的相关性。388名年龄在1至6岁之间接受单侧人工耳蜗植入的儿童被纳入研究。记录他们植入后的基线CAP和SIR评分。所有儿童均接受了1年的强化听觉语言治疗,然后记录他们12个月时的CAP、SIR、MAIS和MUSS评分。将基线CAP/SIR评分与12个月时的CAP/SIR评分进行比较,然后将他们12个月时的CAP/SIR评分分别与12个月时的MAIS/MUSS评分进行相关性分析。基线和12个月时的CAP/SIR评分之间存在显著差异(<0.001)。康复训练12个月后,CAP和SIR评分之间存在强正相关(r = 0.7),而CAP与MAIS评分之间(r = 0.59)以及SIR与MUSS评分之间(r = 0.49)分别存在中度正相关。尽管家长们注意到孩子的沟通能力有显著改善,但正如中度相关性所强调的那样,在康复训练结束时,家长对最终结果的看法并不总是与临床医生的评估一致。目前缺乏一种更精确的整体评估方法,这是有必要的。