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小儿人工耳蜗植入预期益处与实际效果的比较:家长观点

A comparison of the anticipated benefits and received outcomes of pediatric cochlear implantation: parental perspectives.

作者信息

Hyde Merv, Punch Renée, Komesaroff Linda

机构信息

Faculty of Science and Education, University of the Sunshine Coast, Queensland, Australia.

出版信息

Am Ann Deaf. 2010 Summer;155(3):322-38. doi: 10.1353/aad.2010.0020.

Abstract

Findings of a study that investigated parents' expectations and experiences of their children's outcomes with cochlear implants are presented. A survey completed by 247 parents whose children had received implants in eastern Australia compared parents' reports of their preimplant expectations with their experiences of postimplant outcomes on several items related to communication, academic, and psychosocial domains. Quantitative findings derived from the survey data were extended and elaborated on by qualitative findings from interviews with 27 of the parents. The findings indicated that parents' relatively high expectations of their children's outcomes largely had been met, although a tenth of survey respondents reported that their expectations had not been met. It appeared that professionals generally provided parents with realistic expectations. The qualitative findings revealed a complex interaction among parents' expectations, hopes, and determination that their children would do well with the implant. Implications for professionals are discussed.

摘要

本文介绍了一项关于父母对孩子人工耳蜗植入效果的期望及经历的研究结果。在澳大利亚东部,247位孩子接受了人工耳蜗植入的家长完成了一项调查,该调查将家长在植入前对孩子的期望报告,与植入后在沟通、学业和心理社会领域的几个项目上的实际效果体验进行了对比。通过对27位家长的访谈得出的定性研究结果,对从调查数据中得出的定量研究结果进行了补充和细化。研究结果表明,尽管十分之一的受访者表示他们的期望没有实现,但家长们对孩子人工耳蜗植入效果的较高期望总体上得到了满足。看起来专业人员通常为家长们提供了符合实际的期望。定性研究结果揭示了家长的期望、希望以及他们坚信孩子能从植入中受益之间的复杂相互作用。文中还讨论了这些结果对专业人员的启示。

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