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父母对儿童胃造口管喂养相关家庭进餐时间的看法。

Parental Perspectives on Family Mealtimes Related to Gastrostomy Tube Feeding in Children.

机构信息

Halmstad University, Halmstad, Sweden.

Region Halland, Kungsbacka, Sweden.

出版信息

Qual Health Res. 2021 Jul;31(9):1596-1608. doi: 10.1177/1049732321997133. Epub 2021 Mar 5.

Abstract

Built on the important functions daily routines serve families and child health, this study aimed to explore parents' descriptions of mealtimes and food-related challenges when living with a child using a gastrostomy feeding tube. The study was informed by ecocultural theory and based on in-depth interviews combined with stimulated recall. The interviews of 10 parents were inductively analyzed by means of qualitative content analysis. Four main categories comprised the parents' descriptions: "One situation, different functions," "On the child's terms," "Doing something to me," and "An unpredictable pattern," with one overarching theme. The analyses showed that the parents strived to establish mealtimes in line with their cultural context, although they struggled to reach a point of satisfaction. The study highlights the importance of health care professionals to address the medical aspects of caring for a child with a G-tube, but also the potential psychological and social consequences for ordinary family life.

摘要

基于日常生活对家庭和儿童健康的重要功能,本研究旨在探讨父母在与使用胃造口管喂养的孩子共同生活时对用餐时间和与食物相关挑战的描述。本研究的理论基础是生态文化理论,并基于深度访谈结合激发性回忆。通过定性内容分析,对 10 位家长的访谈进行了归纳分析。父母的描述包括四个主要类别:“一种情况,不同的功能”、“按孩子的条件”、“为我做某事”和“不可预测的模式”,并有一个总体主题。分析表明,父母努力按照他们的文化背景建立用餐时间,尽管他们努力达到满意的程度。这项研究强调了医疗保健专业人员既要关注照顾患有 G 管的孩子的医学方面,也要关注对普通家庭生活的潜在心理和社会影响。

相似文献

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Parent-reported effects of gastrostomy tube placement.家长报告的胃造口管放置效果。
Nutr Clin Pract. 2013 Aug;28(4):493-8. doi: 10.1177/0884533613486484. Epub 2013 May 29.

本文引用的文献

2
Abstraction and interpretation during the qualitative content analysis process.定性内容分析过程中的抽象和解释。
Int J Nurs Stud. 2020 Aug;108:103632. doi: 10.1016/j.ijnurstu.2020.103632. Epub 2020 May 15.
8
Evolving Trends of Gastrostomy Insertion Within a Pediatric Population.小儿胃造口术插入的演变趋势。
J Pediatr Gastroenterol Nutr. 2018 Nov;67(5):e89-e94. doi: 10.1097/MPG.0000000000002042.

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