Halmstad University, Halmstad, Sweden.
Region Halland, Kungsbacka, Sweden.
Qual Health Res. 2021 Jul;31(9):1596-1608. doi: 10.1177/1049732321997133. Epub 2021 Mar 5.
Built on the important functions daily routines serve families and child health, this study aimed to explore parents' descriptions of mealtimes and food-related challenges when living with a child using a gastrostomy feeding tube. The study was informed by ecocultural theory and based on in-depth interviews combined with stimulated recall. The interviews of 10 parents were inductively analyzed by means of qualitative content analysis. Four main categories comprised the parents' descriptions: "One situation, different functions," "On the child's terms," "Doing something to me," and "An unpredictable pattern," with one overarching theme. The analyses showed that the parents strived to establish mealtimes in line with their cultural context, although they struggled to reach a point of satisfaction. The study highlights the importance of health care professionals to address the medical aspects of caring for a child with a G-tube, but also the potential psychological and social consequences for ordinary family life.
基于日常生活对家庭和儿童健康的重要功能,本研究旨在探讨父母在与使用胃造口管喂养的孩子共同生活时对用餐时间和与食物相关挑战的描述。本研究的理论基础是生态文化理论,并基于深度访谈结合激发性回忆。通过定性内容分析,对 10 位家长的访谈进行了归纳分析。父母的描述包括四个主要类别:“一种情况,不同的功能”、“按孩子的条件”、“为我做某事”和“不可预测的模式”,并有一个总体主题。分析表明,父母努力按照他们的文化背景建立用餐时间,尽管他们努力达到满意的程度。这项研究强调了医疗保健专业人员既要关注照顾患有 G 管的孩子的医学方面,也要关注对普通家庭生活的潜在心理和社会影响。