Department of Obstetrics and Gynecology, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.
Department of Public Health, University of Helsinki, Helsinki, Finland.
PLoS One. 2021 Mar 10;16(3):e0247164. doi: 10.1371/journal.pone.0247164. eCollection 2021.
To study women's apprehensions, understanding and experiences of counselling concerning a screen-positive result in screening for fetal chromosomal defects.
A questionnaire study including different steps of the prenatal screening process was carried out in Helsinki University Hospital. Women's experiences concerning counselling immediately after a screen-positive result and during further examinations in the Fetal Medicine Unit (FMU) were analyzed.
143 women filled in the questionnaire. Less than half of the women considered the primary counselling after a screen-positive result to be explicit (43.9%) and sufficient (43.1%). In the FMU, 88.3% and 89.8% of women were satisfied with the explicitness and sufficiency of counselling. Most women (75%) experienced worry before further examinations but less than half (45%) had considered their personal values concerning diagnostic tests. Half (50.5%) of women expected the worry to continue even if diagnostic tests turn out normal. Most (81%) women were aware that diagnostic tests are voluntary and were confident (85.3%) with their decision to participate.
After a screen-positive result, women have unanswered questions, experience anxiety and confusion. The possibility of an abnormal screening result is not seriously considered beforehand. To enable an informed consent for prenatal screening, improvements in prescreening counselling during the first visits of antenatal care need to be made.
研究女性在胎儿染色体缺陷筛查中对阳性筛查结果的咨询的担忧、理解和体验。
在赫尔辛基大学医院进行了一项问卷调查研究，包括产前筛查过程的不同步骤。分析了女性在阳性筛查结果后立即接受咨询以及在胎儿医学中心（FMU）进一步检查期间的经验。
143 名女性填写了问卷。不到一半的女性认为阳性筛查结果后的主要咨询是明确的（43.9%）和充分的（43.1%）。在 FMU，88.3%和 89.8%的女性对咨询的明确性和充分性感到满意。大多数女性（75%）在进一步检查前感到担忧，但不到一半（45%）考虑过他们个人对诊断测试的价值观。一半（50.5%）的女性即使诊断测试结果正常，也预计担忧会持续下去。大多数（81%）女性意识到诊断测试是自愿的，并且对参与的决定充满信心（85.3%）。
阳性筛查结果后，女性有未解答的问题，感到焦虑和困惑。事先没有认真考虑异常筛查结果的可能性。为了使产前筛查能够获得知情同意，需要在产前保健的第一次就诊时改进预筛查咨询。
