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德国银屑病护理质量——全国性医疗保健研究PsoHealth 2004 - 2017的结果

Quality of psoriasis care in Germany - results from the nationwide health care studies PsoHealth 2004-2017.

作者信息

Langenbruch A, Mohr N, Kirsten N, Reich K, von Kiedrowski R, Strömer K, Mrowietz U, Augustin M

机构信息

Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.

Dermatologische Spezialpraxis, Selters, Germany.

出版信息

J Eur Acad Dermatol Venereol. 2021 Jul;35(7):1536-1542. doi: 10.1111/jdv.17220. Epub 2021 May 7.

Abstract

BACKGROUND

In the study series PsoHealth first data from 2004/05 showed a poor quality of health care for psoriasis in Germany. Most patients lacked sufficient care and only a minor proportion received systemic drugs. Since 2007, a national psoriasis programme has been conducted.

OBJECTIVES

(1) To analyse the quality of health care for psoriasis in the most recent PsoHealth4 survey 2016/17, (2) to compare health care quality indicators with prior assessments since 2004/05.

MATERIALS AND METHODS

The recent cross-sectional PsoHealth4 survey was conducted 2016/17, and three preceding studies were performed in 2004/05, 2007 and 2013/14, each including at least 1500 patients. The common set of quality indicators included disease severity (PASI and proportion of patients with PASI > 20, indicating high severity), quality of life (DLQI and proportion of patients with DLQI > 10, indicating strong impairments in quality of life), systemic therapy and inpatient treatment of the last five years.

RESULTS

Between December 2015 and December 2017, n = 1827 patients from 93 dermatological centres were included in the most recent survey (mean age: 50.8 ± 14.6 years, 45.2% female). 7.3% showed a PASI > 20, compared to 17.8% in 2004/05. 21.4% reported a DLQI > 10, compared to 34.0% in 2004/05. 57.6% of all participants stated to have received a systemic therapy at least once within the last five years, compared to 32.9% in 2004/05. 18.0% received inpatient hospital treatment at least once within the last five years, compared to 26.9% in 2004/05.

CONCLUSION

A remarkable improvement in the health care quality for psoriasis patients in Germany within the past 12 years can be assumed. Major determinants could be the innovation shift which included programmes such as the S3 guideline, a consensus on treatment goals, national health care goals for psoriasis and higher utilisation of innovative drugs.

摘要

背景

在“银屑病健康”(PsoHealth)系列研究中,2004/05年的首批数据显示德国银屑病的医疗质量较差。大多数患者缺乏充分治疗,只有一小部分患者接受了全身用药。自2007年以来,德国开展了一项全国性银屑病项目。

目的

(1)分析2016/17年最新的“银屑病健康4”(PsoHealth4)调查中银屑病的医疗质量,(2)将医疗质量指标与2004/05年以来的先前评估进行比较。

材料与方法

2016/17年进行了最新的横断面“银屑病健康4”调查,之前在2004/05年、2007年和2013/14年进行了三项研究,每项研究至少纳入1500例患者。通用的质量指标集包括疾病严重程度(银屑病面积和严重程度指数(PASI)以及PASI>20的患者比例,表明高严重程度)、生活质量(皮肤病生活质量指数(DLQI)以及DLQI>10的患者比例,表明生活质量有严重损害)、过去五年的全身治疗和住院治疗情况。

结果

在2015年12月至2017年12月期间,最新调查纳入了来自93个皮肤科中心的1827例患者(平均年龄:50.8±14.6岁,45.2%为女性)。7.3%的患者PASI>20,而2004/05年为17.8%。21.4%的患者报告DLQI>10,而2004/05年为34.0%。所有参与者中有57.6%表示在过去五年中至少接受过一次全身治疗,而2004/05年为32.9%。18.0%的患者在过去五年中至少接受过一次住院治疗,而2004/05年为26.9%。

结论

可以认为在过去12年中德国银屑病患者的医疗质量有了显著改善。主要决定因素可能是创新转变,包括诸如S3指南等项目、治疗目标的共识、银屑病的国家医疗目标以及创新药物的更高利用率。

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