Langenbruch Anna, Radtke Marc Alexander, Jacobi Arnd, Purwins Sandra, Haack Kristina, Reich Kristian, Stroemer Klaus, Mrowietz Ulrich, Augustin Matthias
Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Dermatologikum Hamburg, Hamburg, Germany.
Arch Dermatol Res. 2016 Aug;308(6):401-8. doi: 10.1007/s00403-016-1651-x. Epub 2016 May 20.
Two national surveys conducted in 2005 and 2007 indicated deficits in psoriasis care and induced the composition of the ''National Goals for Health Care in Psoriasis 2010-2015''. The aim of this work was to (1) evaluate the quality of care for patients with psoriasis in Germany, (2) compare this with prior psoriasis studies PsoHealth1 (2005) and PsoHealth2 (2007), and (3) review the implementation of national treatment goals. By means of a cross sectional study the following indicators of health care quality were collected: psoriasis severity (Psoriasis Area Severity Index (PASI) and proportion of PASI >20), quality of life (Dermatology Life Quality Index (DLQI) were corporated: proportion of DLQI >10), previous systemic treatment, inpatient treatment, and days absent from work due to psoriasis. Between January 2013 and March 2014, 1265 patients from 82 dermatological centres were included (mean age of 52 years). 9.2 % had a PASI >20 (2007: 11.6 %; 2005: 17.8 %). 21.3 % reported strong quality of life restrictions (DLQI >10) (2007: 28.2 %; 2005: 34.0 %). 59.5 % had received a systemic treatment at least once within the last 5 years (2007: 47.3 %; 2005: 32.9 %). 20.1 % were treated inpatient within the last 5 years (2007: 20.1 %; 2005: 26.9 %). The current data indicate a better health care situation for psoriasis in Germany. The implementation of the S3-Guideline and the ''National Goals for Health Care in Psoriasis 2010-2015'' could have been contributing factors.
2005年和2007年开展的两项全国性调查显示了银屑病护理方面的不足，并促使制定了“2010 - 2015年银屑病医疗保健国家目标”。这项工作的目的是：（1）评估德国银屑病患者的护理质量；（2）将其与之前的银屑病研究PsoHealth1（2005年）和PsoHealth2（2007年）进行比较；（3）审查国家治疗目标的实施情况。通过横断面研究，收集了以下医疗保健质量指标：银屑病严重程度（银屑病面积和严重程度指数（PASI）以及PASI>20的比例）、生活质量（纳入皮肤病生活质量指数（DLQI）：DLQI>10的比例）、既往全身治疗情况、住院治疗情况以及因银屑病缺勤天数。在2013年1月至2014年3月期间，纳入了来自82个皮肤科中心的1265名患者（平均年龄52岁）。9.2%的患者PASI>20（2007年：11.6%；2005年：17.8%）。21.3%的患者报告生活质量受到严重限制（DLQI>10）（2007年：28.2%；2005年：34.0%）。59.5%的患者在过去5年内至少接受过一次全身治疗（2007年：47.3%；2005年：32.9%）。20.1%的患者在过去5年内接受过住院治疗（2007年：20.1%；2005年：26.9%）。目前的数据表明德国银屑病患者的医疗保健状况有所改善。S3指南和“2010 - 2015年银屑病医疗保健国家目标”的实施可能是促成因素。
