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Involving patients in research during a pandemic.在大流行期间让患者参与研究。
Health Expect. 2020 Jun;23(3):521-522. doi: 10.1111/hex.13079.
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Community participation is crucial in a pandemic.社区参与在大流行中至关重要。
Lancet. 2020 May 30;395(10238):1676-1678. doi: 10.1016/S0140-6736(20)31054-0. Epub 2020 May 4.
3
What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings.激励患者和照护者参与健康研究的因素以及参与如何影响他们的生活:定性调查结果。
Health Expect. 2020 Apr;23(2):328-336. doi: 10.1111/hex.12979. Epub 2019 Dec 4.
4
Codesigning health and other public services with vulnerable and disadvantaged populations: Insights from an international collaboration.与弱势和处境不利人群共同设计卫生和其他公共服务:国际合作的见解。
Health Expect. 2019 Jun;22(3):284-297. doi: 10.1111/hex.12864. Epub 2019 Jan 2.
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Are we going "co-crazy"? An opportunity to learn from health promotion foundations.我们是不是要“集体疯狂”了?向健康促进基金会学习的契机。
Health Promot J Austr. 2018 Dec;29(3):223-224. doi: 10.1002/hpja.215.
6
Homeless health care: meeting the challenges of providing primary care.无家可归者的医疗保健:应对提供初级保健的挑战。
Med J Aust. 2018 Aug 3;209(5):230-234. doi: 10.5694/mja17.01264.
7
Engaging patients to improve quality of care: a systematic review.参与患者以提高医疗质量:系统评价。
Implement Sci. 2018 Jul 26;13(1):98. doi: 10.1186/s13012-018-0784-z.
8
Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare.包容性公众参与健康:促进边缘化群体参与医疗保健的政策、实践及理论贡献。
Soc Sci Med. 2015 Jun;135:31-9. doi: 10.1016/j.socscimed.2015.04.019. Epub 2015 Apr 23.
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The health of homeless people in high-income countries: descriptive epidemiology, health consequences, and clinical and policy recommendations.高收入国家无家可归者的健康:描述性流行病学、健康后果以及临床和政策建议。
Lancet. 2014 Oct 25;384(9953):1529-40. doi: 10.1016/S0140-6736(14)61132-6.
10
Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups.难以接触的人群:改善健康和医学研究与社会弱势群体相关的策略的系统评价。
BMC Med Res Methodol. 2014 Mar 25;14:42. doi: 10.1186/1471-2288-14-42.

“以前从来没有人听我说话”:与无家可归者共同设计。

'No-one has listened to anything I've got to say before': Co-design with people who are sleeping rough.

机构信息

Australian Institute for Primary Care and Ageing, La Trobe University, Bundoora, Victoria, Australia.

cohealth, Melbourne, Victoria, Australia.

出版信息

Health Expect. 2021 Jun;24(3):930-939. doi: 10.1111/hex.13235. Epub 2021 Mar 23.

DOI:10.1111/hex.13235
PMID:33756006
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8235881/
Abstract

BACKGROUND

Despite policies and programmes aimed at housing people who are homeless, there are still people who live and sleep rough. This project used the skills and knowledge of people in this situation to identify a strategy to mitigate some of the risks.

OBJECTIVE

To describe the development and conduct of a co-design project involving people who are homeless.

SETTING/GROUP MEMBERS: A Working Group of 11 was formed following a careful recruitment process from people who had volunteered after consultation by the project team. The co-design approach was guided by a set of principles.

METHODS

Eight members of the Working Group were interviewed by an external researcher (RM). The approach was primarily deductive, with the principles adopted by the project team used as a framework for data collection and analysis. The co-design process was captured by the project leaders (BK, PC) supplemented with documentation review and team discussions.

RESULTS

The group met weekly for 12 weeks, with 8-10 members present on average. They reviewed information from the survey, contributed ideas for solutions and ultimately decided to provide information via print, a website and an event. Important factors in on-going involvement were carefully selecting group members and making participation rewarding for them.

DISCUSSION/CONCLUSIONS: Vulnerable people such as those experiencing homelessness can be excluded from decision-making processes affecting them, as they can be perceived as hard to reach and unable to make a meaningful contribution. This project demonstrated that a carefully managed project, with sufficient resources and commitment, it was possible to involve people who are homeless and maintain involvement over an extended time period.

PUBLIC CONTRIBUTION

The Working Group reviewed survey findings and developed an intervention to minimize the health, social and legal harms of sleeping rough. Several members reviewe this paper.

摘要

背景

尽管有针对无家可归者的住房政策和计划,但仍有人无家可归,露宿街头。本项目利用这些人的技能和知识,确定了一项减轻部分风险的策略。

目的

描述一项涉及无家可归者的共同设计项目的开展和实施。

设置/小组成员:在项目团队咨询后,经过精心招募,从志愿者中选出了 11 名人员组成工作组。共同设计方法遵循一套原则。

方法

通过外部研究人员(RM)对工作组的 8 名成员进行了访谈。方法主要是演绎法,采用项目团队采用的原则作为数据收集和分析的框架。共同设计过程由项目负责人(BK、PC)记录,并辅以文档审查和团队讨论。

结果

该小组每周开会一次,持续 12 周,平均有 8-10 名成员参加。他们审查了调查信息,为解决方案提供了想法,并最终决定通过印刷品、网站和活动提供信息。成员精心挑选和使他们的参与得到回报是持续参与的重要因素。

讨论/结论:处于弱势地位的人,如无家可归者,可能会被排除在影响他们的决策过程之外,因为他们可能被认为难以接触,并且无法做出有意义的贡献。本项目表明,在有足够资源和承诺的情况下,精心管理的项目可以让无家可归者参与,并在较长时间内保持参与。

公众贡献

工作组审查了调查结果,并制定了一项干预措施,以尽量减少露宿街头带来的健康、社会和法律危害。几名成员审查了本文。