Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore.
Department of Rehabilitation, National University Hospital.
J Pediatr Psychol. 2021 Jun 3;46(5):514-525. doi: 10.1093/jpepsy/jsab029.
Prolonged home isolation may lead to long-term negative consequences for both children and caregivers' psychological wellbeing, especially in families with children with neurodevelopmental disorders. Therefore, a scoping review was conducted to identify challenges faced by caregivers of children with neurodevelopmental disorders during the coronavirus disease 2019 (COVID-19) pandemic and to consolidate parenting interventions and guidelines.
A systematic search was conducted on Embase, PsycInfo, PubMed, Scopus, and LitCovid. All article types published between December 2019 and November 2020 which reported on intervention guidelines and experiences of families with children with neurodevelopmental disorders during the COVID-19 pandemic were included. Qualitative themes, quantitative data, and article summaries were charted, and a thematic analysis was conducted.
Twenty-nine articles were included in the review. Three themes were generated: (a) behavioral issues and health concerns, (b) disruptions of lifelines and daily routines, and (c) existing programs, models, and guidelines to support families. Additionally, a list of caregiver strategies such as scheduling regular online consultations, maintaining online therapy, educating a child on COVID-19, and preventive behaviors, creating a structured daily schedule and reinforcement system, and selecting child-appropriate activities was consolidated.
This review revealed a lack of evidence-based studies and articles on children with other neurodevelopmental disorders apart from autism and attention-deficit hyperactivity disorder. It also places emphasis on the importance of telehealth services as major lifelines to parents during this pandemic and urges healthcare organizations to provide funding to increase telehealth services to afflicted families.
儿童和照料者的长期居家隔离可能会对他们的心理健康产生长期的负面影响，尤其是在有神经发育障碍儿童的家庭中。因此，我们进行了一项范围综述，以确定在 2019 冠状病毒病（COVID-19）大流行期间，神经发育障碍儿童的照料者面临的挑战，并整合育儿干预措施和指南。
我们在 Embase、PsycInfo、PubMed、Scopus 和 LitCovid 上进行了系统检索。纳入了所有在 2019 年 12 月至 2020 年 11 月期间发表的报告 COVID-19 大流行期间神经发育障碍儿童家庭的干预指南和经验的文章类型。对定性主题、定量数据和文章摘要进行图表绘制，并进行了主题分析。
综述纳入了 29 篇文章。产生了三个主题：（a）行为问题和健康问题，（b）生命线和日常生活的中断，以及（c）支持家庭的现有计划、模式和指南。此外，还整合了一系列照料者策略，如定期安排在线咨询、维持在线治疗、向儿童普及 COVID-19 知识和预防行为、制定结构化的日常生活时间表和强化系统、以及选择适合儿童的活动。
本综述揭示了缺乏针对除自闭症和注意缺陷多动障碍以外的其他神经发育障碍儿童的基于证据的研究和文章。它还强调了远程医疗服务在这场大流行期间作为父母的重要生命线的重要性，并敦促医疗保健组织提供资金，以增加远程医疗服务，为受影响的家庭提供帮助。
