Women & Infants Hospital, Brown University, Providence, Rhode Island.
Adv Neonatal Care. 2022 Apr 1;22(2):119-124. doi: 10.1097/ANC.0000000000000838. Epub 2021 Mar 25.
Traditionally, the provision of comfort care and support during the dying process for infants born with life-limiting diagnoses has occurred in the neonatal intensive care unit (NICU). A major goal for the families of these infants is often the opportunity to spend as much time as possible with their infant in order to make memories and parent their infant.
The objective of the Mother Baby Comfort Care Pathway is to implement a program of family-centered care with logistically flexible care delivery, allowing mothers and their families to share as normal a postpartum care experience as possible with a focus on quality of life, memory making, and time spent together.
The program was developed with the nucleus of care coordination and provision on the Mother Baby Unit (postpartum unit), with involvement from the labor and delivery room, NICU, and other units as necessary to provide the postpartum mother, her dying infant, as well as possible additional siblings (in the case of multiple gestation), postpartum care while rooming-in. The program was rolled out with training workshops for postpartum nurses.
Nurses who took part in the workshops and the patient care program rated both highly.
The Mother Baby Comfort Care Pathway aims to offer a framework for providing multidisciplinary family-centered comfort care to newborns during the postpartum period in a compassionate, evidence-based, and individualized manner in order to maximize quality time together for families with a dying infant.
传统上，在新生儿重症监护病房（NICU）为患有生命有限诊断的婴儿提供临终关怀和支持。这些婴儿的家庭的主要目标通常是有机会尽可能多地与婴儿在一起，以便留下回忆并养育他们的婴儿。
母婴舒适护理途径的目的是实施以家庭为中心的护理计划，提供灵活的后勤护理服务，使母亲及其家人能够尽可能正常地享受产后护理体验，注重生活质量、记忆制作和共度时光。
该计划的核心是母婴单位（产后病房）的护理协调和提供，涉及分娩室、新生儿重症监护室和其他必要的单位，以提供产后母亲、她即将离世的婴儿以及可能的其他兄弟姐妹（如果是多胎妊娠），同时在母婴同室的情况下进行产后护理。该计划通过为产后护士举办培训研讨会推出。
参加研讨会和患者护理计划的护士都给予了高度评价。
母婴舒适护理途径旨在提供一个框架，以富有同情心、循证和个体化的方式，在产后期间为新生儿提供多学科的以家庭为中心的舒适护理，以便最大限度地增加与即将离世的婴儿的家庭共度的美好时光。
