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关于mCARE的资助报告:针对低收入和中等收入国家(LMICs)自闭症谱系障碍(ASD)儿童的移动护理

Grant Report on mCARE: Mobile-Based Care for Children with Autism Spectrum Disorder (ASD) for Low- and Middle-Income Countries (LMICs).

作者信息

Haque Munirul M, Rabbani Masud, Dipal Dipranjan Das, Zarif Md Ishrak Islam, Iqbal Anik, Akhter Shaheen, Parveen Shahana, Rasel Mohammad, Rabbani Golam, Alam Faruq, Soron Tanjir Rashid, Ahmed Syed Ishtiaque, Ahamed Sheikh Iqbal

机构信息

R.B. Annis School of Engineering, University of Indianapolis, Indianapolis, IN 46227, USA.

Ubicomp Lab, Department of Computer Science, Marquette University, Milwaukee, WI 53233, USA.

出版信息

J Psychiatr Brain Sci. 2021;6. doi: 10.20900/jpbs.20210004. Epub 2021 Feb 26.

Abstract

In low- and middle-income countries, especially in Bangladesh, Autism Spectrum Disorder (ASD) may be considered an anathema, and social-cultural-financial constraints mean that there are few facilities available for treatment for ASD children. The revolution in the use of the mobile phone (~80%) by the majority of people in Bangladesh in recent years has created an opportunity to improve the overall scenario in the treatment or remote monitoring process for children with ASD. In this grant project, we planned and developed a mobile phone-based system to remotely monitor children with ASD and help their treatment process both at the caregiver and care practitioner ends. In developing mCARE, we utilized a Remote Experience Sampling Method to design, build, deploy, and study the impact of mobile based monitoring and treatment of children with ASD in Bangladesh. We developed a mobile application using the Experience Sampling Method (ESM). A caregiver routinely reported the behavioral and milestone parameters of their children with ASD. The care practitioners monitored the longitudinal data that helped them in decision-making in a particular patient's treatment process. The Value Sensitive Design (VSD) was used to make this mobile application more user friendly with consideration of the local economic, social, and cultural values in Bangladesh.

摘要

在低收入和中等收入国家,尤其是在孟加拉国,自闭症谱系障碍(ASD)可能被视为一种令人厌恶的病症,而且社会文化和经济方面的限制意味着几乎没有为自闭症儿童提供治疗的设施。近年来,孟加拉国大多数人(约80%)手机使用的普及为改善自闭症儿童治疗或远程监测的整体情况创造了机会。在这个资助项目中,我们规划并开发了一个基于手机的系统,用于远程监测自闭症儿童,并在照顾者和护理从业者两端帮助他们的治疗过程。在开发mCARE时,我们采用了远程经验抽样方法来设计、构建、部署和研究基于手机的孟加拉国自闭症儿童监测与治疗的影响。我们使用经验抽样方法(ESM)开发了一个移动应用程序。照顾者定期报告他们自闭症孩子的行为和发育里程碑参数。护理从业者监测这些纵向数据,并借此在特定患者的治疗过程中进行决策。价值敏感设计(VSD)被用于使这个移动应用程序在考虑孟加拉国当地经济、社会和文化价值观的情况下更加用户友好。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/68cb/8009555/835c98024167/nihms-1678582-f0001.jpg

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