Institute of Health Policy and Management, Erasmus University Rotterdam, P.O. Box 1738, 3000 DR, Rotterdam, The Netherlands,
J Autism Dev Disord. 2014 Aug;44(8):1933-45. doi: 10.1007/s10803-014-2066-1.
This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs.
本研究描述了自闭症谱系障碍（ASD）儿童父母的照料影响。其次，我们调查了照料相关生活质量工具（CarerQol）的构建效度，以衡量照料的影响。纳入了 ASD 儿童的主要照顾者。许多父母在将日常活动与照顾相结合方面遇到了相当大的问题，存在经济问题或患有抑郁情绪。有效性测试表明，照顾对 CarerQol 的影响越大，主观负担越高，家庭生活质量越低。CarerQol 得分与背景特征之间的大多数关联都证实了先前的研究。CarerQol 在我们的样本中有效地衡量了对 ASD 儿童的照顾对照顾者的影响。因此，CarerQol 可能有助于将父母的结果纳入 ASD 研究中。
