Zuniga-Villanueva Gregorio, Ramos-Guerrero Jorge Alberto, Osio-Saldaña Monica, Casas Jessica A, Marston Joan, Okhuysen-Cawley Regina
Department of Pediatrics, Tecnologico de Monterrey, Monterrey 64849, Mexico.
Division of Pediatric Palliative Medicine, McMaster University, Hamilton, ON L8N 3Z5, Canada.
Children (Basel). 2021 Mar 23;8(3):250. doi: 10.3390/children8030250.
Pediatric palliative care is a growing field in which the currently available resources are still insufficient to meet the palliative care needs of children worldwide. Specifically, in Latin America, pediatric palliative care services have emerged unevenly and are still considered underdeveloped when compared to other regions of the world. A crucial step in developing pediatric palliative care (PPC) programs is delineating quality indicators; however, no consensus has been reached on the outcomes or how to measure the impact of PPC. Additionally, Latin America has unique sociocultural characteristics that impact the perception, acceptance, enrollment and implementation of palliative care services. To date, no defined set of quality indicators has been proposed for the region. This article explores the limitations of current available quality indicators and describes the Latin American context and how it affects PPC development. This information can help guide the creation of standards of care and quality indicators that meet local PPC needs while considering the sociocultural landscape of Latin America and its population.
儿科姑息治疗是一个不断发展的领域，目前可用资源仍不足以满足全球儿童的姑息治疗需求。具体而言，在拉丁美洲，儿科姑息治疗服务发展不均衡，与世界其他地区相比，仍被认为不够发达。制定儿科姑息治疗（PPC）项目的关键一步是确定质量指标；然而，在结果或如何衡量PPC的影响方面尚未达成共识。此外，拉丁美洲具有独特的社会文化特征，这些特征会影响对姑息治疗服务的认知、接受、登记和实施。迄今为止，该地区尚未提出一套明确的质量指标。本文探讨了当前可用质量指标的局限性，并描述了拉丁美洲的背景及其对PPC发展的影响。这些信息有助于指导制定符合当地PPC需求的护理标准和质量指标，同时考虑拉丁美洲的社会文化状况及其人口情况。
