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探索巴西儿科姑息治疗网络：一项调查数据的定量分析。

Exploring the Brazilian pediatric palliative care network: a quantitative analysis of a survey data.

机构信息

Universidade Federal de São Carlos, São Carlos, SP, Brazil.

Universidade de São Paulo, São Paulo, SP, Brazil.

出版信息

Rev Paul Pediatr. 2023 Mar 13;41:e2022020. doi: 10.1590/1984-0462/2023/41/2022020. eCollection 2023.

DOI:10.1590/1984-0462/2023/41/2022020
PMID:36921173
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10014014/
Abstract

OBJECTIVE

The aim of this study was to identify the characteristics of services in Brazil that compound the Brazilian Pediatric Palliative Care (PPC) Network.

METHODS

An online survey was conducted among representatives from PPC services. A total of 90 services from Brazil completed the online survey and answered a questionnaire about the service's characterization, health professionals working in PPC, access to opioid prescription and education, and research in PPC.

RESULTS

In total, 80 services (88.9%) were created after 2010, 52 (57.9%) were in the southeast region, 56 (62.2%) were in public hospitals, 63 (70%) had up to 100 beds, and 57 (63.3%) were at the tertiary level. Notably, 88 (97.8%) had a physician in the team and 68 (75.5%) dedicated part-time to PPC. Also, 33 (36.7%) revealed concern with the care of health professionals and 36 (40%) reported difficulty or no access to opioid prescription. Research studies were reported to be conducted in 29 (32.2%) services.

CONCLUSIONS

This mapping points out to a concentration of PPC services in the southeast region, with part-time professional dedication, and the need to improve professionals' care. Difficulty in opioid access was reported. It is necessary to extend PPC participation to other Brazilian regions, increase time dedicated to PPC, improve professionals' care and improve access to opioid prescription.

摘要

目的

本研究旨在确定构成巴西儿科姑息治疗（PPC）网络的服务特点。

方法

对 PPC 服务代表进行了在线调查。共有来自巴西的 90 个服务机构完成了在线调查，并回答了一份关于服务特点、从事 PPC 工作的卫生专业人员、阿片类药物处方和教育以及 PPC 研究的问卷。

结果

总共 80 个服务机构（88.9%）是在 2010 年后创建的，52 个服务机构（57.9%）位于东南部地区，56 个服务机构（62.2%）位于公立医院，63 个服务机构（70%）拥有多达 100 张床位，57 个服务机构（63.3%）为三级医院。值得注意的是，88 个服务机构（97.8%）团队中有医生，68 个服务机构（75.5%）专门从事 PPC 工作。此外，33 个服务机构（36.7%）关注卫生专业人员的护理问题，36 个服务机构（40%）报告在获得阿片类药物处方方面存在困难或无法获得。报告称，有 29 个（32.2%）服务机构开展了研究工作。

结论

该调查结果表明，PPC 服务集中在东南部地区，专业人员兼职，需要改善专业人员的护理。报告称阿片类药物的获取存在困难。有必要将 PPC 服务扩展到巴西其他地区，增加从事 PPC 工作的时间，改善专业人员的护理，并改善阿片类药物处方的获取。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8172/10014014/98fa87353e34/1984-0462-rpp-41-e2022020-gf2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8172/10014014/72fdba4263e0/1984-0462-rpp-41-e2022020-gf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8172/10014014/98fa87353e34/1984-0462-rpp-41-e2022020-gf2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8172/10014014/72fdba4263e0/1984-0462-rpp-41-e2022020-gf1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8172/10014014/98fa87353e34/1984-0462-rpp-41-e2022020-gf2.jpg

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