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风湿病学中的数字健康转型:定性研究。

Digital Health Transition in Rheumatology: A Qualitative Study.

机构信息

Center for Health Services Research, Brandenburg Medical School Theodor Fontane, 15562 Rüdersdorf, Germany.

Faculty of Health Sciences Brandenburg, Brandenburg Medical School Theodor Fontane, 14476 Potsdam, Germany.

出版信息

Int J Environ Res Public Health. 2021 Mar 5;18(5):2636. doi: 10.3390/ijerph18052636.

DOI:10.3390/ijerph18052636
PMID:33807952
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7967307/
Abstract

The global COVID-19 pandemic has led to drastic changes in the management of patients with rheumatic diseases. Due to the imminent risk of infection, monitoring intervals of rheumatic patients have prolonged. The aim of this study is to present insights from patients, rheumatologists, and digital product developers on the ongoing digital health transition in rheumatology. A qualitative and participatory semi-structured fishbowl approach was conducted to gain detailed insights from a total of 476 participants. The main findings show that digital health and remote care are generally welcomed by the participants. Five key themes emerged from the qualitative content analysis: (1) digital rheumatology use cases, (2) user descriptions, (3) adaptation to different environments of rheumatology care, and (4) potentials of and (5) barriers to digital rheumatology implementation. Codes were scaled by positive and negative ratings as well as on micro, meso, and macro levels. A main recommendation resulting from the insights is that both patients and rheumatologists need more information and education to successfully implement digital health tools into clinical routine.

摘要

全球 COVID-19 大流行导致风湿性疾病患者的管理发生了重大变化。由于感染的迫在眉睫的风险,风湿患者的监测间隔延长了。本研究旨在介绍来自患者、风湿病学家和数字产品开发人员对风湿病学中正在进行的数字健康转型的见解。采用定性和参与式半结构化鱼缸方法,总共从 476 名参与者中获得了详细的见解。主要发现表明,数字健康和远程护理普遍受到参与者的欢迎。从定性内容分析中出现了五个关键主题:(1)数字风湿病学用例,(2)用户描述,(3)适应风湿病学护理的不同环境,(4)数字风湿病学实施的潜力和(5)障碍。代码按积极和消极评分以及微观、中观和宏观层面进行扩展。从这些见解中得出的主要建议是,患者和风湿病学家都需要更多的信息和教育,才能成功地将数字健康工具纳入临床常规。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec5e/7967307/311ea6affafe/ijerph-18-02636-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec5e/7967307/8494d7ce27c8/ijerph-18-02636-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec5e/7967307/2ee62640a3d9/ijerph-18-02636-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec5e/7967307/311ea6affafe/ijerph-18-02636-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec5e/7967307/8494d7ce27c8/ijerph-18-02636-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec5e/7967307/2ee62640a3d9/ijerph-18-02636-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ec5e/7967307/311ea6affafe/ijerph-18-02636-g003.jpg

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Digital rheumatology in the era of COVID-19: results of a national patient and physician survey.COVID-19 时代的数字风湿病学:一项全国患者和医生调查结果。
RMD Open. 2021 Feb;7(1). doi: 10.1136/rmdopen-2020-001548.
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The virtual fishbowl: bringing back dynamic debates to medical conferences.
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Healthcare (Basel). 2025 Feb 18;13(4):438. doi: 10.3390/healthcare13040438.
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Digital Transformation of Rheumatology Care in Germany: Cross-Sectional National Survey.德国风湿病护理的数字化转型:全国横断面调查
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Rheumatology in the digital health era: status quo and quo vadis?数字健康时代的风湿病学:现状与未来走向?
Nat Rev Rheumatol. 2024 Dec;20(12):747-759. doi: 10.1038/s41584-024-01177-7. Epub 2024 Oct 31.
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Identification of Motivational Determinants for Telemedicine Use Among Patients With Rheumatoid Arthritis in Germany: Secondary Analysis of Data From a Nationwide Cross-Sectional Survey Study.德国类风湿关节炎患者使用远程医疗的动机因素识别:一项全国性横断面调查研究数据的二次分析。
J Med Internet Res. 2024 Aug 19;26:e47733. doi: 10.2196/47733.
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