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拉丁裔癌症幸存者及其生存照护者的职业参与:多利益相关者视角的定性探索

The Occupational Participation of Latinx Cancer Survivors and Their Family Caregivers Living in Survivorship: A Qualitative Exploration Informed by Multiple Stakeholders.

机构信息

Department of Occupational Therapy, University of Illinois at Chicago, Chicago, IL, USA.

出版信息

Occup Ther Health Care. 2022 Apr;36(2):116-140. doi: 10.1080/07380577.2021.1907868. Epub 2021 Apr 7.

DOI:10.1080/07380577.2021.1907868
PMID:33825595
Abstract

The purpose of this study was to examine the lived experiences of Latinx cancer survivors and their family caregivers during survivorship. Eighteen semi-structured interviews were conducted with a variety of stakeholders including Latinx cancer survivors (n = 8), their family caregivers (n = 5), and cancer care providers (n = 5). Data were analyzed thematically to describe occupational participation. Latinx families lived in political, economic, language, and social contexts that facilitated and hindered their well-being. Survivors simultaneously experienced occupational deprivation and posttraumatic growth. To promote occupational justice, occupational therapy practitioners and researchers are called to partner with Latinx survivors and their families to facilitate skills needed for everyday participation.

摘要

本研究旨在探讨拉丁裔癌症幸存者及其家庭照顾者在生存期间的生活体验。通过对各种利益相关者(包括拉丁裔癌症幸存者(n=8)、他们的家庭照顾者(n=5)和癌症护理提供者(n=5))进行了 18 次半结构化访谈,采用主题分析法描述了职业参与情况。拉丁裔家庭生活在政治、经济、语言和社会环境中,这些环境促进和阻碍了他们的幸福感。幸存者同时经历职业剥夺和创伤后成长。为了促进职业公正,职业治疗师和研究人员呼吁与拉丁裔幸存者及其家庭合作,为日常参与所需的技能提供便利。

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