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A qualitative study of institutional review board members' experience reviewing research proposals using emergency exception from informed consent.一项关于机构审查委员会成员使用知情同意紧急例外情况审查研究提案的经验的定性研究。
J Med Ethics. 2007 May;33(5):289-93. doi: 10.1136/jme.2005.014878.
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HIV incidence and CDC's HIV prevention budget: an exploratory correlational analysis.艾滋病病毒感染率与美国疾病控制与预防中心的艾滋病预防预算:一项探索性相关分析
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Participatory action research: considerations for ethical review.参与式行动研究:伦理审查的考量
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应对协作性社区研究中的伦理挑战的实用框架。

A Practical Framework for Navigating Ethical Challenges in Collaborative Community Research.

作者信息

Hunter Joyce, Lounsbury David, Rapkin Bruce, Remien Robert

机构信息

HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute and Columbia University, 1051 Riverside Drive, Unit 15, New York, NY 10032, ; ;

Department of Epidemiology and Population Health, Division of Community Collaboration and Dissemination Science, Albert Einstein College of Medicine, 1300 Morris Park Avenue, Belfer Building 13 Floor, Bronx, NY 10461,.

出版信息

Glob J Community Psychol Pract. 2011 Jan;1(3):12-22. doi: 10.7728/0103201102.

DOI:10.7728/0103201102
PMID:33829217
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8023300/
Abstract

To effectively mobilize community-based organizations (CBOs) and international non-governmental organizations (NGOs) in research, important ethical issues must be addressed. A memorandum of understanding (MOU), providing a framework and a tool to be used for establishing effective community-research partnerships, was developed by the Community Collaboration Core (CCC) of the HIV Center for Clinical and Behavioral Studies. Aims of the CCC include: (1) Initiating and sustaining successful partnerships in HIV prevention research in areas of sexuality, gender, mental health, and of mutual benefit to communities; (2) Advancing the science of collaboration among researchers, practitioners, and government in HIV prevention. Developed and assessed over a two-year period by researchers, CBO/NGO and public health representatives, this MOU can be used by potential research and community partners to address the most important issues early in a collaborative research project. Clarifying essential roles, responsibilities, and relationships, establishing trust and transparency in that process, can guide collaborators in planning the important steps for beginning and sustaining an ethical and successful research project.

摘要

为了在研究中有效动员社区组织(CBO)和国际非政府组织(NGO),必须解决重要的伦理问题。由艾滋病毒临床与行为研究中心的社区合作核心(CCC)制定了一份谅解备忘录(MOU),它提供了一个框架和一种用于建立有效的社区-研究伙伴关系的工具。CCC的目标包括:(1)在性、性别、心理健康以及对社区互利的领域发起并维持成功的艾滋病毒预防研究伙伴关系;(2)推动研究人员、从业者和政府在艾滋病毒预防方面的合作科学。这份谅解备忘录由研究人员、CBO/NGO和公共卫生代表在两年时间里制定并评估,潜在的研究和社区伙伴可以在合作研究项目早期使用它来解决最重要的问题。在这一过程中明确基本角色、责任和关系,建立信任和透明度,可以指导合作者规划开展和维持一个符合伦理且成功的研究项目的重要步骤。