Khanlou N, Peter E
Faculty of Nursing, University of Toronto, 50 St. George Street, Toronto, Ont., Canada M5S 3H4.
Soc Sci Med. 2005 May;60(10):2333-40. doi: 10.1016/j.socscimed.2004.10.004. Epub 2004 Dec 19.
This paper addresses the distinctive nature of participatory action research (PAR) in relation to ethical review requirements. As a framework for conducting research and reducing health disparities, PAR is gaining increased attention in community and public health research. As a result, PAR researchers and members of Research Ethics Boards could benefit from an increased understanding of the array of ethical concerns that can arise. We discuss these concerns in light of commonly held ethical requirements for clinical research (social or scientific value, scientific validity, fair subject/participant selection, favourable risk-benefit ratio, independent review, informed consent, and respect for potential and enrolled participants) and refer to guidelines specifically developed for participatory research in health promotion. We draw from our community-based experiences in mental health promotion research with immigrant and culturally diverse youth to illustrate the ethical advantages and challenges of applying a PAR approach. We conclude with process suggestions for Research Ethics Boards.
本文探讨了参与式行动研究(PAR)在伦理审查要求方面的独特性质。作为一种开展研究和减少健康差距的框架,PAR在社区和公共卫生研究中受到越来越多的关注。因此,PAR研究人员和研究伦理委员会成员可能会受益于对可能出现的一系列伦理问题的更多理解。我们根据临床研究通常的伦理要求(社会或科学价值、科学有效性、公平的受试者/参与者选择、有利的风险效益比、独立审查、知情同意以及对潜在和已登记参与者的尊重)来讨论这些问题,并参考专门为健康促进中的参与式研究制定的指南。我们借鉴了我们在促进移民和文化多元青年心理健康研究中的社区经验,以说明应用PAR方法的伦理优势和挑战。我们最后为研究伦理委员会提出了流程建议。