Olomouc University Social Health Institute, Univerzita Palackeho v Olomouci, Olomouc, Czech Republic.
Ann Med. 2024 Dec;56(1):2401610. doi: 10.1080/07853890.2024.2401610. Epub 2024 Nov 18.
Inflammatory bowel diseases (IBD), comprising ulcerative colitis and Crohn's disease, have a profound impact on people's lives. This study aims to investigate the perceived impact of IBD on sexual life and family planning to enhance understanding of the interplay between IBD, sexuality, intimacy and family planning to foster a better quality of life for those living with the condition.
The study used the qualitative DIPEx method (Database of Personal Experiences of Health and Illness) developed by the Health Experiences Research Group at the University of Oxford, standardized for the Czech Republic. Semi-structured interviews with 36 participants (19 with Crohn's disease, 17 with ulcerative colitis) were conducted, employing open coding and thematic analysis. The maximum variation sampling was utilized, considering various factors, such as disease stage, medications, treatments, age, age at diagnosis and sociodemographic characteristics.
Five main topics emerged: sexual activity, body image and discomfort, partner relationships, family planning, and the role of gastroenterologists in family planning decisions. Participants' perceptions of sexuality varied, with some experiencing reduced sexual activity during acute phases of the disease. IBD had contrasting effects on partner relationships, and family planning was an important concern, with women valuing support and collaboration with their gastroenterologists in making pregnancy decisions. Information dissemination and open communication from professionals are highly needed.
This is the first study concerning the sexuality and family planning of people with IBD in the Czech Republic. It highlights the need for information and open communication from professionals.
炎症性肠病（IBD）包括溃疡性结肠炎和克罗恩病，对人们的生活有深远的影响。本研究旨在探讨 IBD 对性生活和计划生育的感知影响，以增强对 IBD、性、亲密关系和计划生育之间相互作用的理解，为患有该病的人提供更好的生活质量。
该研究使用了由牛津大学健康体验研究小组开发的定性 DIPEx 方法（个人健康和疾病体验数据库），并针对捷克进行了标准化。对 36 名参与者（19 名克罗恩病，17 名溃疡性结肠炎）进行了半结构化访谈，采用开放式编码和主题分析。采用最大变异抽样法，考虑了疾病阶段、药物、治疗、年龄、诊断年龄和社会人口学特征等各种因素。
出现了五个主要主题：性行为、身体形象和不适、伴侣关系、计划生育以及胃肠病学家在计划生育决策中的作用。参与者对性行为的看法各不相同，有些人在疾病急性阶段时减少了性行为。IBD 对伴侣关系有不同的影响，计划生育是一个重要的关注点，女性重视在做出怀孕决策时得到胃肠病学家的支持和协作。需要专业人士进行信息传播和开放沟通。
这是捷克首例关于 IBD 患者的性行为和计划生育的研究。它强调了专业人士提供信息和开放沟通的必要性。
