Royal Devon & Exeter NHS Foundation Trust, Exeter, United Kingdom.
School of Health Professions, Faculty of Health & Human Sciences, University of Plymouth, Plymouth, United Kingdom.
PLoS One. 2021 Apr 8;16(4):e0249390. doi: 10.1371/journal.pone.0249390. eCollection 2021.
Anxiety is a common non-motor symptom of Parkinson's and there is no specific pharmacological intervention for people with Parkinson's who experience anxiety. Yet there is little specific research documenting how individuals with this condition experience anxiety. It is important to explore the experiences of people with Parkinson's to identify potential issues in developing future non-pharmacological interventions. This study explored the lived experience of anxiety for people with Parkinson's.
Six participants were recruited into a descriptive phenomenological study, through the charity Parkinson's UK, using a maximum variation sampling strategy. Face to face interviews were conducted. Data analysis employed thematic analysis.
Three key themes encapsulated the data: Finding ways to cope to "Try not to let it rule your life", Amplifies symptoms "It's emotionally draining it it's also physically draining" and "Anxiety is a funny thing" experienced in myriad ways. A model of the experience of PWP experience of anxiety is proposed.
Anxiety is a complex experience constructed of interlinked parts affecting people with Parkinson's in myriad ways. Researchers and healthcare professionals should take these findings into account when designing future studies and interventions.
焦虑是帕金森病常见的非运动症状，而对于患有焦虑症的帕金森病患者，目前尚无特定的药物干预方法。然而，很少有专门的研究记录患有这种疾病的个体是如何体验焦虑的。探索帕金森病患者的体验对于确定未来非药物干预措施的潜在问题非常重要。本研究探讨了帕金森病患者焦虑的生活体验。
通过帕金森病英国慈善机构，采用最大变异抽样策略，从 6 名参与者中招募到描述性现象学研究。进行了面对面访谈。数据分析采用主题分析。
三个关键主题概括了数据：找到应对方法“尽量不让它主宰你的生活”、“它会在情感上和身体上消耗你的精力”和“焦虑是一件有趣的事情”，以各种方式体验。提出了帕金森病患者体验焦虑的模型。
焦虑是一种复杂的体验，由相互关联的部分组成，以多种方式影响帕金森病患者。研究人员和医疗保健专业人员在设计未来的研究和干预措施时应考虑到这些发现。
