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强烈的联系和爱:自闭症母亲的体验。

Intense connection and love: The experiences of autistic mothers.

机构信息

University of Sheffield, UK.

Cardiff and Vale University Health Board & Cardiff University, UK.

出版信息

Autism. 2021 Oct;25(7):1973-1984. doi: 10.1177/13623613211005987. Epub 2021 Apr 12.

Abstract

For many women, adulthood involves becoming a mother. Knowledge of how motherhood is experienced by autistic women is currently poor. Poor knowledge has a range of negative consequences and can lead to inappropriate support. In this study, nine autistic women were interviewed about their experiences of motherhood. Seven of the nine mothers had an officially diagnosed autistic child, the final two mothers also suspected at least one of their children to be autistic. Systematic in-depth analysis of interview transcripts identified a range of common themes. Participants largely experienced motherhood as joyful, rewarding, and enjoyable, though managing children's needs had a profound personal impact. Participants reflected on the need for self-care and self-acceptance, resulting in personal growth and adaptation. Participants also spoke of strong bonds, feelings of intense connection, and a range of shared experiences with their children. It was also clear that autistic motherhood is associated with a series of challenges unlikely to be experienced by non-autistic mothers, including the necessity of negotiating misunderstandings from others. The findings demonstrate that, generally, professionals need to be better educated on how autism presents in adulthood, including the fact that autistic women often engage in behaviour to mask their true self. Professionals need to know that there is potential for mismatching between emotional experience and facial expression, that autistic women have sensory needs (especially in pregnancy). Professionals frequently struggle to effectively take the needs and perspectives of autistic mothers into account, resulting in profoundly negative consequences for the mother.

摘要

对于许多女性来说,成年后会成为母亲。目前,人们对自闭症女性的母性体验知之甚少。知识的匮乏会带来一系列负面影响,并可能导致支持不当。在这项研究中,九位自闭症女性接受了有关其母性体验的访谈。这九位母亲中有七位的孩子被正式诊断为自闭症,最后两位母亲也怀疑至少有一位孩子患有自闭症。对访谈记录的系统深入分析确定了一系列常见主题。参与者大多将为人母视为快乐、有回报和愉快的经历,尽管管理孩子的需求对个人产生了深远的影响。参与者反思了自我照顾和自我接受的必要性,从而实现了个人成长和适应。参与者还谈到了与孩子之间的强烈联系、强烈的情感联系以及一系列共同的经历。很明显,自闭症母亲的身份与一系列不太可能被非自闭症母亲经历的挑战有关,包括与他人沟通误解的必要性。研究结果表明,一般来说,专业人士需要更好地了解自闭症在成年期的表现方式,包括自闭症女性经常采取行为来掩盖真实自我的事实。专业人士需要知道,情绪体验和面部表情之间存在潜在的不匹配,自闭症女性有感官需求(尤其是在怀孕期间)。专业人士经常难以有效考虑自闭症母亲的需求和观点,这对母亲造成了深远的负面影响。

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