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自闭症母亲感官体验的定性探索

A Qualitative Exploration into the Sensory Experiences of Autistic Mothers.

机构信息

Moyna Talcer LTD, Occupational Therapist, PO Box 378, Wallington, SM6 6DQ, Surrey, UK.

Centre for Health and Rehabilitation Technologies, Institute of Nursing and Health Research, Ulster University, Shore Road, Newtownabbey, BT37 0QB, UK.

出版信息

J Autism Dev Disord. 2023 Feb;53(2):834-849. doi: 10.1007/s10803-021-05188-1. Epub 2021 Jul 12.

Abstract

Research has found 96% of autistic individuals experience sensory processing difficulties, and being a parent presents many sensory demands that may be especially challenging for autistic mothers. Despite the high prevalence, no research exists exploring the sensory experiences of autistic mothers, highlighting the gap in current knowledge. Semi-structured interviews were conducted with 7 autistic mothers, data were analysed using thematic analysis identifying 5 major themes: antenatal experiences, sensory experiences in motherhood, the impact of sensory processing difficulties, strategies and needs, diagnosis. This research provides greater insight and understanding into the sensory experiences of autistic mothers which can influence earlier diagnosis and inform appropriate support and adaptations for autistic mothers in a variety of different sectors and highlights a possible emerging role for Occupational Therapists.

摘要

研究发现,96%的自闭症个体存在感觉处理困难,而作为父母会带来许多感官方面的需求,这可能对自闭症母亲来说特别具有挑战性。尽管自闭症的发病率很高,但目前还没有研究探索自闭症母亲的感觉体验,这突显了现有知识的差距。本研究对 7 位自闭症母亲进行了半结构化访谈,使用主题分析对数据进行了分析,确定了 5 个主要主题:产前经历、母性中的感觉体验、感觉处理困难的影响、策略和需求、诊断。本研究更深入地了解了自闭症母亲的感觉体验,这有助于更早地诊断,并为自闭症母亲在各个不同领域提供适当的支持和适应措施,并突出了职业治疗师可能发挥的新作用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5381/9944021/e510e6ec5b9a/10803_2021_5188_Fig1_HTML.jpg

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