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Age Ageing. 2018 Nov 1;47(6):778-784. doi: 10.1093/ageing/afy096.
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On the path to 2025: understanding the Alzheimer's disease continuum.通往2025之路:理解阿尔茨海默病连续体
Alzheimers Res Ther. 2017 Aug 9;9(1):60. doi: 10.1186/s13195-017-0283-5.
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Communication Partner Training in Aphasia: An Updated Systematic Review.失语症的沟通伙伴训练:一项更新的系统评价。
Arch Phys Med Rehabil. 2016 Dec;97(12):2202-2221.e8. doi: 10.1016/j.apmr.2016.03.023. Epub 2016 Apr 23.
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Supporting communication for patients with neurodegenerative disease.为神经退行性疾病患者提供沟通支持。
NeuroRehabilitation. 2015;37(1):69-87. doi: 10.3233/NRE-151241.
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Physician-assisted suicide of patients with dementia. A medical ethical analysis with a special focus on patient autonomy.医师协助痴呆患者自杀。一项特别关注患者自主性的医学伦理分析。
Int J Law Psychiatry. 2013 Sep-Dec;36(5-6):444-53. doi: 10.1016/j.ijlp.2013.06.016. Epub 2013 Jul 12.
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Abductive reasoning and qualitative research.溯因推理与定性研究。
Nurs Philos. 2012 Oct;13(4):244-56. doi: 10.1111/j.1466-769X.2011.00532.x.
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The assessment of decisional capacity.决策能力评估。
Neurol Clin. 2011 Feb;29(1):115-26, viii. doi: 10.1016/j.ncl.2010.10.001.
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A memory and organizational aid improves Alzheimer disease research consent capacity: results of a randomized, controlled trial.一种记忆和组织辅助工具可提高阿尔茨海默病研究同意能力:一项随机对照试验的结果。
Am J Geriatr Psychiatry. 2010 Dec;18(12):1124-32. doi: 10.1097/JGP.0b013e3181dd1c3b.
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Curr Neurol Neurosci Rep. 2010 Sep;10(5):367-73. doi: 10.1007/s11910-010-0123-5.
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Mental capacity to make decisions on treatment in people admitted to psychiatric hospitals: cross sectional study.精神病医院住院患者做出治疗决策的心理能力:横断面研究
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对医疗协助死亡知情同意能力的评估:一项关于临床医生经验的定性研究。

Assessment of capacity to give informed consent for medical assistance in dying: a qualitative study of clinicians' experience.

作者信息

Wiebe Ellen, Kelly Michaela, McMorrow Thomas, Tremblay-Huet Sabrina, Hennawy Mirna

机构信息

Department of Family Practice (Wiebe), University of British Columbia, Vancouver, BC; University of London (Kelly), London School of Hygiene and Tropical Medicine, Department of Epidemiology and Population Health, London, UK; Ontario Tech University (McMorrow), Faculty of Social Science and Humanities, Legal Studies, Oshawa, Ont.; Université de Sherbrooke (Tremblay-Huet), Faculty of Law, Sherbrook, Que.; University of British Columbia (Hennawy), Kelowna, BC

Department of Family Practice (Wiebe), University of British Columbia, Vancouver, BC; University of London (Kelly), London School of Hygiene and Tropical Medicine, Department of Epidemiology and Population Health, London, UK; Ontario Tech University (McMorrow), Faculty of Social Science and Humanities, Legal Studies, Oshawa, Ont.; Université de Sherbrooke (Tremblay-Huet), Faculty of Law, Sherbrook, Que.; University of British Columbia (Hennawy), Kelowna, BC.

出版信息

CMAJ Open. 2021 Apr 13;9(2):E358-E363. doi: 10.9778/cmajo.20200136. Print 2021 Apr-Jun.

DOI:10.9778/cmajo.20200136
PMID:33849985
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8084565/
Abstract

BACKGROUND

Under the Canadian , medical assistance in dying (MAiD) requires that patients give informed consent and that their ability to consent is assessed by 2 clinicians. In this study, we intended to understand how Canadian clinicians assessed capacity in people requesting MAiD.

METHODS

This qualitative study used interviews conducted between August 2019 and February 2020, by phone, video and email, to explore how clinicians assessed capacity in people requesting MAiD, what challenges they had encountered and what tools they used. The participants were recruited from provider mailing listserves of the Canadian Association of MAiD Assessors and Providers and Aide médicale à mourir. Interviews were audio-recorded and transcribed verbatim. The research team met to review transcripts and explore themes as they emerged in an iterative manner. We used abductive reasoning for thematic analysis and coding, and continued to discuss until we reached consensus.

RESULTS

The 20 participants worked in 5 of 10 provinces across Canada, represented different specialties and had experience assessing a total of 2410 patients requesting MAiD. The main theme was that, for most assessments, the participants used the conversation about how the patient had come to choose MAiD to get the information they needed. When the participants used formal capacity assessment tools, this was mostly for meticulous documentation, and they rarely asked for psychiatric consults. The participants described how they approached assessing cases of nonverbal patients and other challenging cases, using techniques such as ensuring a quiet environment and adequate hearing aids, and using questions requiring only "yes" or "no" as an answer.

INTERPRETATION

The participants were comfortable doing MAiD assessments and used their clinical judgment and experience to assess capacity in ways similar to other clinical practices. The findings of this study suggest that experienced MAiD assessors do not routinely require formal capacity assessments or tools to assess capacity in patients requesting MAiD.

摘要

背景

在加拿大,医疗协助死亡(MAiD)要求患者给予知情同意,且其同意能力需由两名临床医生进行评估。在本研究中,我们旨在了解加拿大临床医生如何评估申请MAiD者的能力。

方法

这项定性研究采用了2019年8月至2020年2月期间通过电话、视频和电子邮件进行的访谈,以探讨临床医生如何评估申请MAiD者的能力、他们遇到了哪些挑战以及使用了哪些工具。参与者从加拿大MAiD评估者与提供者协会以及医疗协助死亡协会的提供者邮件列表中招募。访谈进行了录音并逐字转录。研究团队开会审查转录本,并以迭代方式探索出现的主题。我们采用归纳推理进行主题分析和编码,并持续讨论直至达成共识。

结果

20名参与者在加拿大10个省中的5个省工作,代表不同专业,共评估了2410名申请MAiD的患者。主要主题是,对于大多数评估,参与者通过与患者讨论其如何选择MAiD来获取所需信息。当参与者使用正式的能力评估工具时,大多是为了进行细致的记录,且他们很少寻求精神科会诊。参与者描述了他们如何处理非言语患者及其他具有挑战性的病例,采用了诸如确保安静环境和配备合适助听器,以及使用只需回答“是”或“否”的问题等技巧。

解读

参与者对进行MAiD评估感到得心应手,并运用他们的临床判断和经验,以与其他临床实践类似的方式评估能力。本研究结果表明,经验丰富的MAiD评估者在评估申请MAiD的患者能力时,通常并不需要常规使用正式的能力评估或工具。