癌症患儿的青少年兄弟姐妹：从健康促进的角度进行的定性研究。
Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective.
机构信息
Department of Health and Caring Science, Faculty of Health and Social Sciences, Western Norway University of Applied Sciences , Bergen, Norway.
Children's Clinic, Department of Cancer and Haemathology, St. Olavs Hospital, Trondheim University Hospital , Trondheim, Norway.
出版信息
Int J Qual Stud Health Well-being. 2020 Dec;15(1):1842015. doi: 10.1080/17482631.2020.1842015.
PURPOSE
To explore the experiences of adolescents with a sibling suffering from cancer from a salutogenic health promotion perspective.
METHODS
Seven female siblings aged 13-17 years were interviewed. The interviews were transcribed and subjected to qualitative content analysis.
RESULTS
The analysis findings adhered largely to one main theme: , consisting of the two domains and . Categories related to the cancer into life domain were , and . Helpful resources to cope were categorized as , and
CONCLUSION
Prominent in the siblings' descriptions were the challenging changes in everyday life including difficult feelings such as loneliness, and a need for understanding. Social support appeared as a crucial salutogenic coping resource to achieve understanding, faith and hope, and identity-crucial spheres to achieve meaning in life. This study has demonstrated the significance of salutogenesis in a new setting, and the findings could be of relevance to teachers and health professionals consulting with the siblings of children with cancer. Further research should be conducted to pinpoint concrete health-promoting measures that might benefit this group.
目的
从健康促进的角度探讨患有癌症的青少年的兄弟姐妹的体验。
方法
对 7 名 13-17 岁的女性兄弟姐妹进行了访谈。访谈记录被转录，并进行了定性内容分析。
结果
分析结果主要遵循一个主题：“应对癌症的日常生活的挑战变化”，包括两个领域：“应对挑战”和“寻找意义”。与癌症相关的类别被归入“日常生活”和“困难感受”。应对挑战的资源被归类为“社会支持”和“寻找意义的资源”。
结论
在兄弟姐妹的描述中，突出的是日常生活中具有挑战性的变化，包括孤独等困难感受，以及对理解的需求。社会支持是实现理解、信仰和希望以及身份至关重要的领域，从而实现生活意义的重要健康促进应对资源。本研究在新环境中展示了健康促进的重要性，研究结果可能与咨询癌症儿童兄弟姐妹的教师和卫生专业人员有关。应进一步开展研究，以确定可能使这一群体受益的具体促进健康的措施。
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