Carolyn and Matthew Bucksbaum Professor of Clinical Ethics, Professor of Pediatrics, Medicine, Surgery and the College, Associate Director of the MacLean Center for Clinical Medical Ethics, Co-Director of the Institute for Translational Medicine, University of Chicago, United States of America.
Professor Emeritus of Surgery, Section on Transplantation Surgery, Faculty Emeritus of the MacLean Center for Clinical Medical Ethics, University of Chicago, United States of America.
Transplant Rev (Orlando). 2021 Jul;35(3):100614. doi: 10.1016/j.trre.2021.100614. Epub 2021 Apr 9.
In the United States, women are over-represented and Blacks are under-represented as living kidney donors. A traditional bioethics approach would state that as long as living donors believe that the benefits of participation outweigh the risks and harms (beneficence) and they give a voluntary and informed consent, then the demographics reflect a mere difference in preferences. Such an analysis, however, ignores the social, economic and cultural determinants as well as various forms of structural discrimination (e.g., racism, sexism) that may imply that the distribution is less voluntary than may appear initially. The distribution also raises justice concerns regarding the fair recruitment and selection of living donors. We examine the differences in living kidney donor demographics using a vulnerabilities analysis and argue that these gender and racial differences may not reflect mere preferences, but rather, serious justice concerns that need to be addressed at both the individual and systems level.
在美国,女性作为活体肾脏捐献者的比例过高,而黑人作为活体肾脏捐献者的比例过低。传统的生命伦理学方法会指出,只要活体捐献者认为参与的益处大于风险和危害(有益),并且他们自愿并知情同意,那么人口统计学上的差异仅仅反映了偏好的不同。然而,这种分析忽略了社会、经济和文化决定因素以及各种形式的结构性歧视(例如,种族主义、性别歧视),这些因素可能意味着这种分配的自愿性不如最初看起来的那样。这种分配也引发了关于活体捐献者公平招募和选择的正义问题。我们使用脆弱性分析来研究活体肾脏捐献者人口统计学上的差异,并认为这些性别和种族差异可能不仅仅反映了偏好,而是严重的正义问题,需要在个人和系统层面上加以解决。