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在 COVID-19 大流行期间加拿大的医疗协助死亡体验如何变化:对提供者的定性研究。

How the experience of medical assistance in dying changed during the COVID-19 pandemic in Canada: a qualitative study of providers.

机构信息

Department of Family Medicine (Wiebe), University of British Columbia, Vancouver, BC; University of London (Kelly), London, UK; University of Ontario Institute of Technology (McMorrow), Oshawa, Ont.; Université de Sherbrooke (Tremblay-Huet), Sherbrooke, Que.; University of British Columbia (Sum, Hennawy), Vancouver, BC

Department of Family Medicine (Wiebe), University of British Columbia, Vancouver, BC; University of London (Kelly), London, UK; University of Ontario Institute of Technology (McMorrow), Oshawa, Ont.; Université de Sherbrooke (Tremblay-Huet), Sherbrooke, Que.; University of British Columbia (Sum, Hennawy), Vancouver, BC.

出版信息

CMAJ Open. 2021 Apr 16;9(2):E400-E405. doi: 10.9778/cmajo.20200163. Print 2021 Apr-Jun.

Abstract

BACKGROUND

In March 2020, all levels of government introduced various strategies to reduce the impact of the COVID-19 pandemic. The purpose of this study was to document how the experience of providing medical assistance in dying (MAiD) changed during the COVID-19 pandemic.

METHODS

We conducted a qualitative study using semistructured interviews with key informants in Canada who provided or coordinated MAiD before and during the COVID-19 pandemic. We interviewed participants from April to June 2020 by telephone or email. We collected and analyzed data in an iterative manner and reached theme saturation. Our team reached consensus on the major themes and subthemes.

RESULTS

We interviewed 1 MAiD coordinator and 15 providers, including 14 physicians and 1 nurse practitioner. We identified 4 main themes. The most important theme was the perception that the pandemic increased the suffering of patients receiving MAiD by isolating them from loved ones and reducing available services. Providers were distressed by the difficulty of establishing rapport and closeness at the end of life, given the requirements for physical distancing and personal protective equipment. They were concerned about the spread of SARS-CoV-2, and found it difficult to enforce rules about distancing and the number of people present. Logistics and access to MAiD became more difficult because of the new restrictions, but there were many adaptations to solve these problems.

INTERPRETATION

Providers and coordinators had many challenges in providing MAiD during the COVID-19 pandemic, including their perception that the suffering of their patients increased. Some changes in how MAiD is provided that have occurred during the pandemic, including more telemedicine assessments and virtual witnessing, are likely to remain after the pandemic and may improve service.

摘要

背景

2020 年 3 月,各级政府出台了各种策略来减轻 COVID-19 大流行的影响。本研究的目的是记录在 COVID-19 大流行期间提供协助死亡(MAiD)的经验如何发生变化。

方法

我们采用半结构式访谈,对加拿大在 COVID-19 大流行之前和期间提供或协调 MAiD 的主要知情人进行了定性研究。我们于 2020 年 4 月至 6 月间通过电话或电子邮件对参与者进行了采访。我们以迭代的方式收集和分析数据,直到达到主题饱和。我们的团队对主要主题和子主题达成了共识。

结果

我们采访了 1 名 MAiD 协调员和 15 名提供者,其中包括 14 名医生和 1 名护士从业者。我们确定了 4 个主要主题。最重要的主题是大流行通过将患者与亲人隔离并减少可用服务来增加接受 MAiD 的患者的痛苦的看法。提供者对在生命末期建立融洽关系和亲密关系感到困扰,因为需要保持身体距离和个人防护设备。他们担心 SARS-CoV-2 的传播,并发现很难执行关于保持距离和在场人数的规定。由于新的限制,物流和获得 MAiD 变得更加困难,但有许多适应措施可以解决这些问题。

解释

提供者和协调员在 COVID-19 大流行期间提供 MAiD 时遇到了许多挑战,包括他们认为患者的痛苦增加了。在大流行期间发生的一些 MAiD 提供方式的变化,包括更多的远程医疗评估和虚拟见证,很可能会在大流行结束后继续存在,并可能改善服务。

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