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“控制感”:患者对多模式疼痛康复的体验及其对日常生活的影响

"Sense of Control": Patients' Experiences of Multimodal Pain Rehabilitation and its Impact in their Everyday Lives.

作者信息

Samulowitz Anke, Nordstrom Pia, Wiklund Malin, Stankovic Nenad, Hensing Gunnel

机构信息

Epidemiology and Social Medicine, Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, SE-405 30 Goteborg, Sweden.

Centre for Equity in Health Care, Region Vastra Gotaland, Regionens Hus, SE-405 44 Goteborg, Sweden.

出版信息

J Rehabil Med Clin Commun. 2019 Apr 24;2:1000014. doi: 10.2340/20030711-1000014. eCollection 2019.

DOI:10.2340/20030711-1000014
PMID:33884115
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8008717/
Abstract

OBJECTIVE

Long-lasting pain is a challenge for pa-tients' everyday lives. The aim of this study was to examine how women and men who have participa-ted in multimodal pain rehabilitation experience its impact in their everyday lives.

PATIENTS AND METHODS

Individual semi-structured interviews with 5 women and 3 men who had parti-cipated in multimodal pain rehabilitation at a clinic in Sweden, analysed using qualitative content ana-lysis.

RESULTS

Participants perceived that their "sense of control" increased, which had a positive impact in their everyday life. Sense of control consisted of 3 categories: importance of the patient-provider re-lationship, knowledge gained (especially on body functions and medication), and pain in a social con-text. Three results were discussed in particular: () a trustful patient-provider relationship based on confidence in the provider's expertise was a pre-requisite for pain acceptance; () patients were aware of gender norms in healthcare; () social support was not stressed as important to cope with pain.

CONCLUSION

The importance of patients' confidence in the provider's expertise and patients' awareness about gender norms need consideration in terms of the patient-provider encounter. The value of social support for pain rehabilitation was found to be less important compared with previous research; this should be explored further.

摘要

目的

长期疼痛对患者的日常生活是一项挑战。本研究的目的是考察参与多模式疼痛康复的女性和男性如何体验其对他们日常生活的影响。

患者与方法

对在瑞典一家诊所参与多模式疼痛康复的5名女性和3名男性进行个体半结构式访谈,采用定性内容分析法进行分析。

结果

参与者认为他们的“控制感”增强,这对他们的日常生活产生了积极影响。控制感包括3个类别:医患关系的重要性、获得的知识(尤其是关于身体功能和药物方面的知识)以及社交背景下的疼痛。特别讨论了3个结果:(1)基于对提供者专业知识的信任而建立的医患信任关系是疼痛接纳的前提条件;(2)患者意识到医疗保健中的性别规范;(3)社会支持在应对疼痛方面未被强调为重要因素。

结论

在医患互动方面,需要考虑患者对提供者专业知识的信任以及患者对性别规范的认识的重要性。与先前研究相比,发现社会支持对疼痛康复的价值不那么重要;对此应进一步探讨。

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J Rehabil Med. 2018 Jan 10;50(1):73-79. doi: 10.2340/16501977-2286.
2
Walking down 'Via Dolorosa' from primary health care to the specialty pain clinic - patient and professional perceptions of inequity in rehabilitation of chronic pain.从初级医疗保健机构到专科疼痛诊所,沿着“苦路”前行——患者与专业人士对慢性疼痛康复中不公平现象的看法。
Scand J Caring Sci. 2017 Mar;31(1):45-53. doi: 10.1111/scs.12312. Epub 2016 Feb 25.
3
Does pain severity guide selection to multimodal pain rehabilitation across gender?
疼痛严重程度是否会指导不同性别的患者选择多模式疼痛康复治疗?
Eur J Pain. 2015 Jul;19(6):826-33. doi: 10.1002/ejp.609. Epub 2014 Nov 4.
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Low-educated women with chronic pain were less often selected to multidisciplinary rehabilitation programs.受教育程度低且患有慢性疼痛的女性较少被选入多学科康复项目。
PLoS One. 2014 May 21;9(5):e97134. doi: 10.1371/journal.pone.0097134. eCollection 2014.
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The impact of social support on the acceptance process among RA patients: a qualitative study.社会支持对 RA 患者接受过程的影响:一项定性研究。
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Being in an exchange process: experiences of patient participation in multimodal pain rehabilitation.处于交流过程中:患者参与多模式疼痛康复的体验。
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