University College Dublin, Dublin, Ireland.
Family Carers Ireland, Dublin, Ireland.
Health Soc Care Community. 2022 May;30(3):1133-1142. doi: 10.1111/hsc.13365. Epub 2021 Apr 23.
The Coronavirus disease 2019 (COVID-19) pandemic public health and social protective measures imposed globally resulted in partial or full closure of key services and supports for services and supports for people with a disability, chronic illness or age-related dependency. This caused huge disruption to care provision and family carers were relied upon to assume this care at home. Many family carers, including those in employment, found themselves navigating additional care responsibilities without 'usual levels' of support from family, friends, work, school, day care services, homecare and community services. The purpose of this study was to examine the impact of the COVID-19 pandemic on family carers, their employment and care-giving responsibilities, through the lens of the Conservation of Resources (COR) theory (Hobfoll, 1989). Adopting a qualitative research approach, 16 family carers (14 females, 2 males) who were in employment prior to the onset of or during the pandemic, participated in an in-depth, semi-structured telephone or online video interview between June and September 2020. Interviews lasted between 45 and 100 min, were audio-recorded and transcribed verbatim. A thematic analysis of the interview data identified four main themes: colliding worlds; navigating unchartered waters alone; opportunity despite adversity and the relentless unknowing. Findings indicate that the onset of the pandemic resulted in the sudden loss of valued resources, which disrupted routines and caused care and work life domains to become intrinsically intertwined. Consistent with the main principles of the COR theory, adapting and transitioning to different ways of working and caring with depleted resources and supports, generated considerable stress for family carers and impacted their well-being. The implications for employers, healthcare providers, policy makers and other key stakeholders are considered, to enable family carers to successfully reconcile work with care and protect their well-being, as the pandemic continues to unfold and in the event of future societal crises.
2019 年冠状病毒病(COVID-19)大流行期间,全球实施的公共卫生和社会保护措施导致为残疾人、慢性病患者或与年龄相关的依赖者提供的关键服务和支持部分或全部关闭。这导致护理服务严重中断,家庭照顾者不得不承担家庭护理工作。许多家庭照顾者,包括那些有工作的人,发现自己在没有家庭、朋友、工作、学校、日托服务、家庭护理和社区服务“通常水平”支持的情况下,承担了额外的护理责任。本研究旨在通过资源保护(COR)理论(Hobfoll,1989)的视角,研究 COVID-19 大流行对家庭照顾者及其就业和照顾责任的影响。采用定性研究方法,在大流行开始前或大流行期间有工作的 16 名家庭照顾者(14 名女性,2 名男性)参加了 2020 年 6 月至 9 月之间的深入、半结构化电话或在线视频访谈。访谈时间在 45 至 100 分钟之间,全程录音并逐字记录。对访谈数据的主题分析确定了四个主要主题:碰撞的世界;独自在未知的水域中航行;逆境中的机遇和无情的未知。研究结果表明,大流行的爆发导致有价值的资源突然流失,打乱了日常生活,使护理和工作生活领域紧密交织在一起。与 COR 理论的主要原则一致,在资源和支持枯竭的情况下,适应和过渡到不同的工作和照顾方式,给家庭照顾者带来了相当大的压力,并影响了他们的幸福感。考虑了对雇主、医疗保健提供者、政策制定者和其他利益相关者的影响,以使家庭照顾者能够在大流行继续发展的情况下成功地协调工作与护理,并保护他们的福祉,以及在未来发生社会危机时。