The Kinsey Institute, Indiana University, United States.
School of Nursing, Indiana University, United States.
Epilepsy Behav. 2021 Jun;119:107937. doi: 10.1016/j.yebeh.2021.107937. Epub 2021 Apr 21.
Prior research has demonstrated that PWEs view intimate interpersonal relationships as personally important and as a substantive challenge in their lives. This is significant as high-quality intimate relationships have been linked with greater well-being and better healthcare self-management in other disease contexts. For persons with epilepsy (PWEs), self-management is critical for seizure control, lower mortality, and better quality of life. In the current study, we conducted the first known investigation into the quality of PWEs' intimate relationships and their self-management abilities. In a sample of 88 PWEs, using the Adult Epilepsy Self-Management Instrument, results demonstrate links between greater relationship satisfaction and sexual satisfaction with better self-management on seven of the eleven subscales: health communication, coping skills, social support, seizure tracking, seizure response, stress management, and wellness; satisfaction was unrelated to the treatment, safety, medical adherence, and proactivity subscales. Importantly, these results held while controlling for age, gender, social support, and presence of comorbidities. These findings provide some evidence of the importance of intimate relationships in understanding PWEs' healthcare management abilities. Given that intimate relationship dynamics have been shown to be highly amenable to intervention, this is an area of potential interest for improving self-management in PWEs.
先前的研究表明,癫痫患者(PWEs)将亲密的人际关系视为个人重要的一部分,也是他们生活中的实质性挑战。这一点很重要,因为在其他疾病背景下,高质量的亲密关系与更高的幸福感和更好的医疗保健自我管理有关。对于癫痫患者(PWEs)来说,自我管理对于控制癫痫发作、降低死亡率和提高生活质量至关重要。在本研究中,我们首次对 PWEs 的亲密关系质量及其自我管理能力进行了调查。在 88 名 PWEs 的样本中,使用成人癫痫自我管理量表(Adult Epilepsy Self-Management Instrument)的结果表明,在十一个子量表中的七个子量表上,关系满意度和性满意度越高,自我管理能力越好:健康沟通、应对技能、社会支持、癫痫发作追踪、癫痫发作反应、压力管理和健康;而在治疗、安全性、医疗依从性和主动性方面,满意度与这些方面无关。重要的是,这些结果在控制了年龄、性别、社会支持和合并症的情况下仍然成立。这些发现为亲密关系在理解 PWEs 的医疗保健管理能力方面的重要性提供了一些证据。鉴于亲密关系动态已被证明非常适合干预,这是一个可能有助于改善 PWEs 自我管理的领域。