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痛风、高尿酸血症及晶体相关性疾病网络(G-CAN)痛风的通用语言定义。

Gout, Hyperuricaemia and Crystal-Associated Disease Network (G-CAN) common language definition of gout.

机构信息

Department of Medicine, Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand.

Department of Primary Care, Harvard Medical School, Boston, Massachusetts, USA.

出版信息

RMD Open. 2021 Apr;7(2). doi: 10.1136/rmdopen-2021-001623.

Abstract

OBJECTIVE

To develop a Gout, Hyperuricaemia and Crystal-Associated Disease Network (G-CAN) common language definition of gout, with the goal of increasing public understanding and awareness, and ensure consistent and understandable messages about gout.

METHODS

A G-CAN working group that included patients, physicians and nongovernmental organisation (NGO) representatives was formed to develop a common language definition of gout for use with the public, media, healthcare providers and stakeholders. A literature search and interviews with patients, healthcare workers and stakeholders informed development of the definition. Following consultation with G-CAN members and partners, the definition was endorsed by the G-CAN board.

RESULTS

The G-CAN common language definition of gout describes the epidemiology, pathophysiology, symptoms and impact, risk factors, comorbidities, management and healthcare and workforce considerations. Detailed information is provided to support the content of the definition. After the publication of the English-language version, the definition will be available for translation into other languages by G-CAN members.

CONCLUSION

G-CAN has developed a concise and easily understandable statement describing gout in language that can be used in conversations with the lay public, media, NGOs, funders, healthcare providers and other stakeholders.

摘要

目的

制定痛风、高尿酸血症和晶体相关性疾病网络(G-CAN)的痛风通用语言定义,以提高公众的认识和意识,并确保痛风相关信息能够保持一致且易于理解。

方法

成立了一个由患者、医生和非政府组织(NGO)代表组成的 G-CAN 工作组,以制定用于公众、媒体、医疗保健提供者和利益相关者的痛风通用语言定义。通过文献检索和对患者、医疗保健工作者和利益相关者的访谈,为定义的制定提供了信息。在与 G-CAN 成员和合作伙伴进行磋商后,该定义得到了 G-CAN 董事会的认可。

结果

G-CAN 的痛风通用语言定义描述了痛风的流行病学、病理生理学、症状和影响、危险因素、合并症、管理以及医疗保健和劳动力方面的内容。详细信息可用于支持定义的内容。英文版本发布后,G-CAN 成员可将其翻译为其他语言。

结论

G-CAN 制定了一个简洁且易于理解的声明,用通俗易懂的语言描述了痛风,可用于与普通大众、媒体、非政府组织、资助者、医疗保健提供者和其他利益相关者进行交流。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0fb4/8076916/bcf41e2e4bdb/rmdopen-2021-001623f01.jpg

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