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新冠疫情对头颈癌幸存者的污名化影响

Stigmatic Impact of COVID-19 Pandemic on Head & Neck Cancers Survivors.

作者信息

Goyal Atul Kumar, Bakshi Jaimanti, Panda Naresh K, Kapoor Rakesh, Vir Dharam, Kumar Krishan, Aneja Pankaj

机构信息

Department of Otolaryngology and Head and Neck Surgery (ENT), Post Graduate Institute of Medical Education and Research (PGIMER), Chandigarh, 160012 India.

Homi Bhabha Cancer Hospital and Research Center, Punjab, 140901 India.

出版信息

Indian J Otolaryngol Head Neck Surg. 2022 Oct;74(Suppl 2):2912-2916. doi: 10.1007/s12070-021-02545-5. Epub 2021 Apr 22.

Abstract

Social stigma is the spoilation of the social image of an individual, which leads to the social disapproval of the individual by the community. Patients of many diseases like HIV, deafness, and reproductive disorders often face social disproval. Head & neck cancer survivors perceived stigma due to the mutilation that occurred after surgical treatment procedures. The novel coronavirus is a recently emerged zoonotic viral agent that affects the respiratory system of humans. Following its outbreak from the Wuhan city of China, the COVID-19 spreaded fiercely around the globe, forming a pandemic. Since COVID-19 is a contagious disease with no available treatment, social distancing is considered as the best strategy to prevent the geometric spread of infection. With the social distancing model, the head & neck cancer survivors along with the various other stakeholders perceived stigma being a high-risk group for COVID-19 infection. As the pool of caregivers is diminished due to pandemic, head & neck cancer survivors face increased social isolation and perceived stigma in asking for help from relatives. At the time of the pandemic, social support is critical to fighting against the disease. Social distancing should be maintained along with communication with the patients through calls, text, and online social platforms. It is not wise to stigmatize disease as, in that case, patients who are infected with the disease will try to hide it and avoid seeking medical care. With the promotion of social distancing, it is crucial to convey awareness regarding not to stigmatize the disease.

摘要

社会污名是对个人社会形象的损害,导致社区对该个体产生社会不认可。许多疾病的患者,如艾滋病毒感染者、聋人和生殖系统疾病患者,常常面临社会的不认可。头颈癌幸存者因手术治疗后出现的身体残缺而感受到污名。新型冠状病毒是一种最近出现的人畜共患病毒,会影响人类的呼吸系统。自中国武汉市爆发以来,新冠病毒在全球范围内迅速传播,形成了大流行。由于新冠病毒是一种尚无有效治疗方法的传染病,保持社交距离被认为是防止感染呈几何级数传播的最佳策略。在社交距离模式下,头颈癌幸存者以及其他各种利益相关者被视为新冠病毒感染的高危群体,因而感受到污名。由于疫情导致护理人员减少,头颈癌幸存者在向亲属求助时面临更多的社会孤立和污名感。在疫情期间,社会支持对于抗击疾病至关重要。应在通过电话、短信和在线社交平台与患者沟通的同时保持社交距离。将疾病污名化是不明智的,因为在这种情况下,感染该疾病的患者会试图隐瞒病情并避免寻求医疗护理。随着社交距离措施的推行,传达不将疾病污名化的意识至关重要。

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