Goyal Atul Kumar, Bakshi Jaimanti, Panda Naresh K, Kapoor Rakesh, Vir Dharam, Kumar Krishan, Aneja Pankaj
Department of Otolaryngology and Head and Neck Surgery, Post Graduate Institute of Medical Education and Research, Chandigarh, India.
Homi Bhabha Cancer Hospital and Research Center, Ferozpur Bangar, Punjab India.
J Maxillofac Oral Surg. 2024 Feb;23(1):16-22. doi: 10.1007/s12663-021-01658-2. Epub 2021 Oct 23.
Head and neck cancer is the most common cancer around the globe, following lung cancer and breast cancer. Treatment at advanced stages of head and neck cancer is usually followed intense surgical procedures, which leads to mutilation among patients. Mutilation imparts a sense of disgrace and causes a feeling of shame and stigma in the patient. The feeling of shame and stigma persists over time and affects the overall long-term survival of patients by deteriorating their quality of life.
Since shame and stigma is an important psychological domain of head and neck cancer, the present article aims toward evaluating the studies published so far for the assessment of shame and stigma in head and neck cancer and highlighting the lacunae in the existing research designs. The present study also aims to design a checklist that could be followed while developing, translating, or validating a psychometric instrument that aims to measure shame and stigma in head and neck cancer.
In the present metanalysis, all articles published in the past years on shame and stigma in head and neck cancer was compiled using a predefined data extraction matrix. The available literature was compiled for major objectives of the study, the sample size used, major findings, and critical lacunae that need to be addressed.
Shame and stigma is a very important domain of psychological well-being in head and neck cancer patients, which yet not appropriately addressed and further need to be researched.
Future studies could be based on the lacunae highlighted in the existing literature, and the prescribed methodology checklist could be taken into consideration while conducting further studies involving developing, translating, or validating a psychometric instrument related to shame and stigma in the head and neck cancer.
头颈癌是全球第三大常见癌症,仅次于肺癌和乳腺癌。头颈癌晚期的治疗通常需要进行复杂的外科手术,这会导致患者身体残缺。身体残缺会让患者产生耻辱感,引发羞耻和污名化的感觉。这种羞耻和污名化的感觉会持续存在,并通过降低患者的生活质量影响其整体长期生存。
由于羞耻和污名化是头颈癌一个重要的心理领域,本文旨在评估迄今发表的关于头颈癌羞耻和污名化评估的研究,并突出现有研究设计中的缺陷。本研究还旨在设计一份清单,以便在开发、翻译或验证旨在测量头颈癌羞耻和污名化的心理测量工具时遵循。
在本荟萃分析中,使用预定义的数据提取矩阵汇编了过去几年发表的所有关于头颈癌羞耻和污名化的文章。对现有文献进行汇编,以了解研究的主要目的、使用的样本量、主要发现以及需要解决的关键缺陷。
羞耻和污名化是头颈癌患者心理健康的一个非常重要的领域,但尚未得到适当解决,需要进一步研究。
未来的研究可以基于现有文献中突出的缺陷,在进行进一步研究时,包括开发、翻译或验证与头颈癌羞耻和污名化相关的心理测量工具时,可以考虑规定的方法清单。