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慢性病患儿和青少年自我管理策略的理论和背景考虑因素:综合评价。

Theoretical and contextual considerations for self-management strategies of children and adolescents with chronic diseases: An integrative review.

机构信息

College of Nursing, 2345Medical University of South Carolina, Charleston, SC, USA.

Libraries Department of Research & Education Services, 2345Medical University of South Carolina, Charleston, SC, USA.

出版信息

J Child Health Care. 2022 Jun;26(2):242-261. doi: 10.1177/13674935211013697. Epub 2021 Apr 29.

Abstract

The primary aim of this integrative review was to critically evaluate and synthesize published, peer-reviewed research to better understand self-management strategies of children and adolescents with chronic diseases. This review was guided by Whittemore and Knafl's methodological framework. The Pediatric Self-management Model provided the theoretical framework for understanding how self-management behaviors operate within the domains of individual, family, community, and healthcare systems. In June 2019, the electronic databases of EBSCOhost, PubMed, and Scopus, along with reference lists of applicable studies, were searched for appropriate publications. The initial searches yielded 920 citations. Of these, 11 studies met inclusion criteria. A key finding was that involving children and adolescents in the design and delivery phases of interventions was most effective in improving self-management when the interventions did not outweigh cognitive ability or maturity level. In addition, incorporating self-efficacy promotion into self-management interventions may lead to greater sense of responsibility and improved health outcomes. In terms of intervention delivery of self-management strategies, the use of technological platforms and devices was revealed as a promising avenue for youth. A final implication was the importance of family members, peers, and healthcare providers in supporting children and adolescents in adopting self-management behaviors.

摘要

本次综合回顾的主要目的是批判性地评估和综合已发表的同行评议研究,以更好地了解患有慢性病的儿童和青少年的自我管理策略。本回顾以 Whittemore 和 Knafl 的方法论框架为指导。儿科自我管理模型为理解自我管理行为如何在个体、家庭、社区和医疗保健系统领域发挥作用提供了理论框架。2019 年 6 月,检索了 EBSCOhost、PubMed 和 Scopus 的电子数据库以及相关研究的参考文献列表,以查找合适的出版物。最初的搜索产生了 920 条引文。其中,有 11 项研究符合纳入标准。一项重要发现是,当干预措施不会超过认知能力或成熟度水平时,让儿童和青少年参与干预措施的设计和实施阶段对于改善自我管理最为有效。此外,将自我效能提升纳入自我管理干预措施中可能会导致更大的责任感和改善的健康结果。就自我管理策略的干预措施实施而言,使用技术平台和设备被证明是青少年的一个有前途的途径。最后一个影响是家庭成员、同伴和医疗保健提供者在支持儿童和青少年采用自我管理行为方面的重要性。

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